The LAM Foundation urgently seeks safe and effective treatments, and ultimately a cure, for lymphangioleiomyomatosis (LAM) through advocacy and the funding of promising research. We are dedicated to serving the scientific, medical and patient communities by offering information, resources and a worldwide network of hope and support.
Save the Date!!
The 2016 Rare Lung Disease Research Conference, LAMposium & Breath of Hope Gala will take place September 22-25, 2016. This year's conference will be held at the Cincinnati Marriott RiverCenter (Covington, KY).
Click here to watch a view from the 2015 conference.
Million Dollar Bike Ride Fund Matching Program for
Fall 2015 LAM Foundation Fundraisers
On May 9, 2015, the LAM Foundation and its Easy Breathers Cycling Team participated in the Million Dollar Bike Ride (MDBR), hosted by the University of Pennsylvania (UPENN) in Philadelphia. More than $130,000 was raised for LAM research and the UPENN Medicine Orphan Disease Center matched the first $50,000, dollar for dollar.
In an attempt to see that the surplus funds raised for the MDBR will be matched and be 100% directed to LAM research, a new fundraising opportunity has been developed.
If you are considering hosting a fundraising event for The LAM Foundation in the second half of 2015 you may qualify to have your net proceeds matched by The LAM Foundation MDBR Fund dollar for dollar, and 100% of the proceeds will go directly to LAM research.
Participants must commit to and reach a goal of contributing $10,000 or $20,000 in net proceeds to The LAM Foundation. The event to which the match is being applied must be pre-approved by the Foundation, hosted and and donations received at the Foundation by December 31, 2015.
Additional considerations apply.
For more details and to discuss your event, please contact Sue Sherman, Executive Director at the Foundation at 513-777-6889 or at email@example.com.
Journeys, our comprehensive biannual journal on LAM research, patient advocacy, education and awareness is hitting mailboxes now. Click here to read online.
OXYGEN: KNOW YOUR RIGHTS
Over the last 12 months there is an increasing number of issues shared within our LAM community about access to liquid oxygen therapy. The LAM Foundation has teamed up with other rare and chronic lung disease organizations to fight for your rights to the most appropriate oxygen therapy. We are grateful to the COPD Foundation for sharing the attached educational/advocacy materials with us. Please read the below if you are experiencing issues with your oxygen supplier. Consider making the calls even if you are on commercial insurance. The COPD Foundation will track trends and issues with suppliers, no matter the insurance payer. It will help us build our case for better access and reimbursement. The LAM community perspective is particularly important because we need to fight for the rights of active people who want to stay mobile – not tethered to a tank at home.
Click here to learn more about your rights.
MIDAS Trial Webinar
If you were unable to attend the webinar on the MIDAS Trial you can click here to view the recording of Dr. Frank McCormack's presentation.
FDA Approval of Rapamycin as a Treatment for LAM
Click here to view the press release from the FDA.
Click here to view the press release from Pfizer.
Click here to view the press release from UC Health.
Click here to view the press release from The LAM Foundation.
New LAM Awareness Videos
The LAM Foundation is thrilled to share with you videos that will help us raise LAM awareness.
These videos captures the strength of all women with LAM.
It also shows the urgency we all feel as we work together to find a cure faster.
We would like to thank Dana Garrett and David Butz from Trailhead Films and board member Eden Pontz.
Click here to view The LAM Foundation overview video (2:34).
Click here to view the full length video (5:00).
Once you have a moment to watch these videos, you are going to want to share it with family, friends, co-workers, and your community.
Worldwide LAM Awareness Day
Click here to learn more and to start your online fundraising campaign.
September 30, 2015
August 31, 2015
July 31, 2015
June 30, 2015
May 29, 2015
April 30, 2015
February 27, 2015
January 30, 2015
Click here to view the slideshow of pictures from this year's LAMposium. You will need Adobe Reader to view the slideshow.
Planning A Fundraiser
It’s fun and easy to plan a fundraiser to benefit the Foundation. Start by downloading and filling out The LAM Foundation’s Independent Fundraising Packet and Budget Form. Then send both items to Sue Sherman at firstname.lastname@example.org or Kerri Morgan at email@example.com.
We will review your information and contact you within 3 to 5 business days. If you have any questions regarding fundraising or the forms, contact us at 513.777.6889 or at firstname.lastname@example.org or email@example.com.
Personal Journeys With LAM
The LAM Foundation is pleased to offer LAM patients an electronic copy of Personal Journeys With LAM, a collection of stories written by women who are living with LAM. It’s our hope that you’ll feel inspired as you read these personal stories of courage and determination.
An electronic copy was emailed to all LAM patients who have given the Foundation their email address. If you did not receive this email and would like to have an electronic copy of Personal Journeys With LAM please email the Foundation with your request at firstname.lastname@example.org.
Please note: Personal Journeys With LAM is to be considered private and confidential. Therefore, it’s very important that you not share your copy with anyone (family, friends, etc.) or post it on any social media. Please be respectful to those who have written and shared their personal story so that you can feel connected to others and feel less alone in your own journey with LAM.
Emergency Room Quick Facts Card for LAM
The LAM Foundation is excited to offer LAM patients an easy way to provide doctors in the ER with information about LAM. A small easy to carry card (the size of a typical business card) that is easy to carry and contains helpful information that you can share with the doctor when you go to an ER. The card can be inserted into a luggage tag and attached to a purse for easy reference.
Click here to request a NEW ER Quick Fact Card with updated ICD-10 code for LAM.
Neither The LAM Foundation nor any staff member is qualified or intended to serve as a source of medical advice. All material contained or referenced on this website, including health- or medical-related materials, is for informational purposes only. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition.
The LAM Foundation attempts to verify the accuracy of information regarding LAM Clinics and health care providers prior to posting on this website. The Foundation does not guarantee and is not responsible for the accuracy of information or the quality of medical care received at any institution, clinic, or by a medical provider listed on our website. The LAM Foundation is not liable for any damages that may result from the use of this site.
If you think you may have a medical emergency, call your doctor or 911 immediately.