Video Library

Dr. Joel Moss and the LAM team from the National Institutes of Health (NIH) discuss research being conducted in current and planned LAM protocols. They describe what to expect when you participate in the protocols and provide updates about ongoing clinical and translational research studies.

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Have questions about the Patient Voice Committee application? Watch this Q&A with The LAM Foundation's Director of Education and Advocacy, Cindy Beasley. Please send additional questions to Patientservices@thelamfoundation.org.

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LAM clinic directors Dr.'s Baqir, Gupta, and Higuero-Sevilla answer patient questions on research, LAM progression, pulmonary function tests, and more.

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Explore the use of the LAM Cell Atlas presented by Yan Xu, PhD of the Division of Pulmonary Biology and Biomedical Informatics at Cincinnati Childrens’ Hospital Medical Center. Scientists are actively researching LAM to better understand its pathogenesis and develop improved treatments. The application of single-cell multi-omics in LAM provides valuable insights into the disease cells and their interactions within the disease environment. However, it generates complex data that can be challenging for researchers without computational skills to utilize effectively. To address this, the LAM Cell Atlas (LCA-v1) was created in 2022. The LAM Cell Atlas (LCA) is a free web-based portal that provides easy access to integrated single-cell RNA sequencing data compiled from the analysis of lung, uterus, and kidneys of patients with LAM. The LCA provides user-friendly graphical interfaces with a variety of interactive options for investigators to search, visualize, and reanalyze comprehensive single-cell omics data sets without the need for programming or coding. The LCA provides a robust data resource to test new hypotheses and discover novel biomarkers. The LCA can be accessed here. Watch this webinar to learn more about this important and easily accessible tool for LAM research.

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Susan Jacobs provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

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Since its inception, The LAM Foundation has invested over $18 million in LAM research with one of the biggest breakthroughs resulting in a current treatment. Progress and hope remain with The LAM Foundation’s current research portfolio of 15 active grants. Dr. Vera Krymskaya, Scientific Director for The LAM Foundation gave us the roadmap for LAM research as we continue to move forward in our fight for a cure.

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LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up-to-date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

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To mark this important moment, members of our Board of Directors shared their reflections on what this refreshed mission means to them—and why it matters now more than ever.

Their perspectives speak to the heart behind these words and the responsibility we share to turn this mission into meaningful action.

Our mission comes to life not only through research milestones and programs, but through the people who make up The LAM Foundation community—patients, families, clinicians, researchers, donors, and advocates.

As we look to the future, this refreshed mission will continue to guide our work—fueling new discoveries, strengthening compassionate care, and amplifying voices until better treatments and ultimately a cure are within reach.

We invite you to reflect and share: What does The LAM Foundation mean to you? Please email info@thelamfoundation.org with your response. Your voice is an essential part of the mission we carry forward together.

Thank you for being part of The LAM Foundation community and for helping bring this mission to life.

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Please join us for this interactive discussion with post-transplant patients as they reflect on their experiences and the things they wish they’d known along the way.

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