Video Library

Dr. Marina Holz presented findings from the LAM Patient Research Priorities Survey (LAM-PREP.) In 2023, 754 members of the LAM community responded to this important survey. Watch this recording to learn what insights were gained and their impact on the Foundation’s research efforts and strategic planning process.

Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.

Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.

00:02:42 Pelvic Floor Overview
00:16:15 Pelvic Floor and LAM Research
00:34:30 What Can You Do?
01:01:00 Q&A Session

Click this link to download a handout for your pelvic floor therapist: https://www.thelamfoundation.org/wp-content/uploads/2024/12/LAM-letter-to-potential-Pelvic-Floor-Therapists.pdf

Watch this informative presentation featuring Bridget Doyle, a lung transplant dietitian, who provides comprehensive, step-by-step nutritional guidance on preparing for and thriving after your transplant. Discover strategies for managing weight, maintaining bone health, handling medication interactions, and ensuring proper vitamin and mineral intake, along with essential food safety precautions.

Watch LAM experts Dr. Vera Krymskaya, Dr. Lisa Henske, and Dr. Stephen Hammes discuss current LAM research priorities and what holds potential for new therapies in the future.

The LAM Foundation’s initial investment of $12 million in scientific grants has led to an additional $90 million in federal funding for LAM research. A notable example of this multiplier effect is Dr. Vera
Krymskaya, whose lab received a seed grant that yielded a remarkable 1:16 return on investment. This funding was instrumental in pioneering the research that paved the way to the FDA-approved treatment, rapamycin.

When you donate to The LAM Foundation you help researchers gather crucial data, apply for large grants, and accelerate the search for better treatments and a cure.

https://give.thelamfoundation.org/campaign/day-of-giving-2024/c591326?utm_source=YT&utm_medium=Video&utm_campaign=Day+of+Giving+2024&utm_id=DOG2024&utm_content=Vera

Please join us on Thursday, September 12, 2024, for The LAM Foundation’s Day of Giving.
For 29 years, The LAM Foundation has been dedicated to increasing awareness, accelerating research, and finding a cure for lymphangioleiomyomatosis. Foundation-funded research has enabled patients to live longer and healthier than ever with LAM. But we must do more. That’s why we host the annual Day of Giving, where 100% of every dollar raised is directed to LAM research.