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Register – Opens March 24

Patient and Family Conference

International LAM Research Conference

Breath of Hope Gala

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FAQ

International Lam Research Conference

The 2025 International LAM Research Conference & LAMposium is The LAM Foundation’s marquee event, which includes a state-of-the-art scientific meeting and a dedicated patient and family conference. This year’s event in Kansas City will continue the highly successful format of blending patient and family participation with leading edge discussions about basic and translational advances in LAM research. We look forward to welcoming attendees from around the world to this important conference that celebrates the research innovation, courage, and resilience of the LAM community as we strive to find better treatments, and ultimately a cure, for LAM.

Scientific presentations and panel discussions led by international content experts will provide a forum to discuss the molecular and cellular basis of LAM, present leading-edge research, integrate concepts, identify creative and innovative research directions, recruit promising junior investigators, and pave the way for future advancements and discoveries in LAM.

This year’s research conference is being co-chaired by Elizabeth Petri Henske, MD, PhD, from Harvard Medical School and Brigham and Women’s Hospital, and Simon Johnson, DM, FRCP, from the University of Nottingham, Queens Medical Center.

The poster session will be chaired by Charilaos (Harry) Filippakis, PhD, from the University of New England. The conference will be dynamic with ample time for Q&A, discussion, and networking opportunities.

The scientific sessions will cover broad facets of LAM science including recent exciting advances in single cell RNA sequencing, estrogen signaling, lymphatic biology, and other metabolic processes relevant to LAM. In addition, future direction related to hormonal involvement and improving clinical trial designs to accelerate translation in LAM will be explored in panel-based discussions.

View Agenda

Confirmed speakers

Mary Beth Brown, PT, PhD
University of Washington
Minzhe Guo, PhD
Cincinnati Children’s Hospital Medical Center
Nishant Gupta, MD
University of Cincinnati Medical Center
Stephen Hammes, MD, PhD
University of Rochester Medical Center

Elizabeth Henske, MD, PhD
Brigham and Women’s Hospital

Marina Holz, PhD, MPH, DrPH
New York Medical College
Lyndsay Hoy, MD
Perelman School of Medicine, University of Pennsylvania
Simon Johnson, DM
University of Nottingham
Magdalena Karbowniczek, PhD
Texas Tech University Health Sciences Center
Arnold Kristof, MDCM
McGill University Health Centre
Vera Krymskaya, PhD, MBA
Perelman School of Medicine, University of Pennsylvania
l. Caroline Le Poole, PhDNorthwestern University
Katharina Maisel, PhD
University of Maryland
Courtney A. Marsh, MD, MPH, FACOG
University of Kansas Medical Center
Francis X. McCormack, MD
University of Cincinnati College of Medicine
Tomi Pastinen, MD, PhD
University of Missouri-Kansas City, Children’s Mercy Kansas City
Carmen Priolo, MD, PhD
Harvard Medical School, Brigham and Women’s Hospital
Steven L. Roberds, PhD
Chief Science Officer, TSC Alliance
Amy Ryan, PhD
University of Iowa
William L. Stanford, PhD
The Ottawa Hospital Research Institute
Yan Tang, PhD
Harvard Medical School, Brigham and Women’s Hospital
Yan Xu, PhD
Cincinnati Children’s Hospital Medical Center
Jane Yu, PhD
University of Cincinnati College of Medicine

Other Conference Highlights

LAMposium Patient & Family Educational Conference
Begins 9 am Friday, September 26 – Ends 10 am Sunday, September 28
The two fully programmed days feature educational sessions covering a broad range of interests for patients and families affected by LAM.
Wine & Cheese Poster Reception
Friday, September 26
This lively social reception caps the first full day of the conference while highlighting current LAM research projects, providing a platform for researchers to present their work and mingle with fellow professional attendees and patients alike. 2025 Poster Chair is Charilaos (Harry) Filippakis,PhD, from the University of New England.
Call for Abstracts

Friday, September 26
Studies on basic, translational, and clinical aspects of lymphangioleiomyomatosis are welcomed. Abstracts will be reviewed by the organizing committee to evaluate significance, innovation, and impact, then selected for platform abstract, poster, or poster plus one-minute abstract presentation opportunities. Deadline to submit is June 20. Submit your abstract by clicking HERE. The 2025 Poster Chair is Charilaos (Harry) Filippakis,PhD, from the University of New England.

Early Career Researchers Happy Hour

Friday, September 26
Early Career Researchers will gather for this casual, hosted happy hour, to promote scientific exchange, getting to know colleagues and peers, and fostering collaboration among the next generation of LAM scientists.
LAM Clinic Director Congress
Friday, September 26
Friday, September 26
The LAM Clinic Director Congress is chaired by the co-chairs of the Clinical Advisory Board. Attendees will convene over a meal to meet the clinicians of the Kansas City LAM clinic, engage in discussions on challenging cases and clinical practice guidelines, and set priorities for continued improvement and innovation of the LAM Clinic Network.
Breath of Hope Gala
Saturday, September 27
The Breath of Hope Gala is the LAM Foundation’s largest annual fundraiser for research. Attendees include individuals with LAM, their families and friends, and the scientific and medical LAM community from around the globe. This formal wear event is a highlight of the conference and complementary to all registrants.
Conclusion and Wrap Up
Sunday, September 28
Our co-chairs of the International LAM Research Conference will summarize the presentations, ideas, and activities of this intensive learning and sharing event.
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