This interactive educational webinar series features a broad range of topics presented by LAM experts. These sessions offer a remarkable opportunity to interact with clinicians, scientists, patients, and other members of our global LAM community. Registration is free and open to all.
Check our events calendar and watch your inbox for date and speaker updates. Upcoming Presentations to be Announced.
Dr. Joel Moss and the LAM team from the National Institutes of Health (NIH) discuss research being conducted in current and planned LAM protocols. They describe what to expect when you participate in the protocols and provide updates about ongoing clinical and translational research studies.
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LAMposium in Your Living Room: LAM Protocols at the National Institutes of Health (NIH)
Susan Jacobs provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.
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LAMposium in Your Living Room: Understanding Supplemental Oxygen
LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up-to-date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.
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Rapamycin: From Fruit Flies to Easter Island, and MILES To Go (Recorded 2024)
Watch 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.
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LAMposium in Your Living Room: Highlights from the 2025 International LAM Research Conference
Dr. Marina Holz presented findings from the LAM Patient Research Priorities Survey (LAM-PREP.) In 2023, 754 members of the LAM community responded to this important survey. Watch this recording to learn what insights were gained and their impact on the Foundation’s research efforts and strategic planning process.
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LAMposium in Your Living Room: LAM-PREP Survey Results
Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.
Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.
00:02:42 Pelvic Floor Overview
00:16:15 Pelvic Floor and LAM Research
00:34:30 What Can You Do?
01:01:00 Q&A Session
Click this link to download a handout for your pelvic floor therapist: https://www.thelamfoundation.org/wp-content/uploads/2024/12/LAM-letter-to-potential-Pelvic-Floor-Therapists.pdf
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LAMposium in Your Living Room: LAM and The Pelvic Floor Connection