Educational Webinars

The LAM Foundation offers educational webinars covering a broad range of topics relevant to the LAM community. See the list below to check out recordings of these sessions.

Previously Recorded Webinars

• How to Best Integrate the LAM Clinic Network in Your Care | LAMposium In Your Living Room

• Recorded on 12/2/2020
• Listen to Dr. Nishant Gupta, Medical Director of the LAM Clinic Network, as he describes the clinic network, outlines its central role in driving high quality care and fostering collaborative research in LAM and other rare lung diseases, and discusses best practices to maximize the value of LAM clinics in your overall care.

• Lung Transplantation in the Time of COVID-19: What has Changed? What has remained the same?

• Recorded 11/18/2020
• How has COVID-19 impacted the lung transplant community? Please listen to this informative presentation offered by Dr. Dan Dilling, medical director of our Circle of Hope Transplant Support Program (COH).

• Quality of Life: What Can We Learn from the Literature and Each Other?

• Recorded on 11/7/2020
• Matthew Koslow, MD, Assistant Professor, Division of Pulmonary, Critical Care Medicine & Sleep Medicine, Department of Medicine, from National Jewish Health speaks on the topic "Quality of Life: What Can We Learn from the Literature and Each Other?" 

• Complications of LAM

• Recorded on 10/17/2020
• Ali Ataya, MD, Assistant Professor of Medicine, Co-Director, LAM and Rare Lung Diseases Clinic, from the University of Florida speaks on the complications of LAM during the 2020 Virtual TSC & LAM Conference Series. 

• From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM | LAMposium In Your Living Room 

• Recorded on 10/7/2020
• Dr. Charlie Strange, LAM Clinic Director at the Medical University at South Carolina, discusses what is often a patient’s first painful experience with LAM—pneumothorax. This informative session titled, "From Biopsies to Pleurodesis: Understanding Surgical Interventions for LAM" will also explore chylothorax and surgical interventions such as angiomyolipoma resection and lung transplantation.

• Pregnancy and Delivery in Women with LAM

• Recorded on 9/12/2020
• Joseph Barney, MD, LAM Clinic Director, from the University of Alabama at Birmingham speaks on pregnancy and delivery in women with LAM during the 2020 Virtual TSC & LAM Conference Series. 

• Rapamycin: From Fruit Flies to Easter Island and MILES In Between | LAMposium In Your Living Room

• Recorded on 9/2/2020
• This presentation by LAM specialist Dr. Kotloff will cover the rationale for why rapamycin appeared to be an excellent drug for treating LAM, what we learned from the MILES trial, and our experience in using rapamycin. Dr. Kotloff will also discuss who is eligible to receive this treatment, its potential side effects, and what questions remain about the risks and benefits associated with its use.

• Looking Towards the Future In LAM 

• Recorded on 7/16/2020
• As part of "LAM Week at the ATS" and in conjunction with PAR partner the LAM Foundation, the ATS hosted a webinar on July 16th. The webinar is entitled, "Looking Toward the Future in LAM" and was presented by Nishant Gupta, MD of the University of Cincinnati.

• LAM Science Forum | LAMposium In Your Living Room

• Recorded on 6/3/2020
• The second session in our LAMposium In Your Living Room education series, “LAM Science Forum: LAM Tissue Donors Participate in Building on Discoveries in Mouse Models to Advance our Understanding of LAM,” featuring Stephen Hammes, MD, PhD, and Kathryn Wikenheiser-Brokamp, MD, PhD. In this unique session, Drs. Hammes and Wikenheiser-Brokamp will share their insights on the latest LAM research. This informal discussion format will highlight the critical role of patient-donated tissues and mouse models in advancing our understanding of LAM disease to inform the development of new diagnostic and treatment strategies. You will also learn how hormones influence LAM progression.

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• Exercise & LAM What Do We Know? | LAMposium In Your Living Room

• Recorded on 5/6/2020
• "Exercise & LAM: What Do We Know?" featuring Mary Beth Brown, PT, PhD is the first webinar of our LAMposium In Your Living Room series. Listen as she shares insights from her study that examines the impact of a home-based exercise program for patients living with LAM. She will discuss aspects of her study as well as the benefits of exercise in the LAM population.

• Powering LAM Research Webinar

• Recorded on 1/16/2020

• Women with LAM have a long tradition of taking action to create a better future for themselves and others living with LAM through education and participating in scientific research. Continue this trailblazing culture by watching this webinar presented by Frank McCormack, MD, Scientific Director of The LAM Foundation.

• LAM Evidence-Based Practice Guidelines

  
  Recorded on 4/28/2018
  
  Lymphangioleiomyomatosis Evidence Based Practice video is a one hour review of the 2016 and 2017 ATS/JRS Clinical Practice Guidelines presented by experienced LAM Clinic Directors. This video covers recommendations for diagnosis, treatment, and management of LAM patients.

• Management of LAM: What Every Patient Should Know

  
  Recorded on 3/7/2018
  
  Nishant Gupta, MD, LAM Clinic Director at the University of Cincinnati and Medical Director of the LAM Clinic Network leads this informative webinar. In this webinar, Dr. Gupta highlights what every patient should know about how LAM is managed by their clinical care team.

• Chest Pain : Insight into the Reasons Why Women with LAM Have Pain

• Recorded on 3/8/2016
• As part of LAM Week at the ATS and in conjunction with PAR partner The LAM Foundation, the ATS presented a live webinar held on Tuesday, March 8, 2016. The webinar entitled, "Chest Pain: Insight into the Reasons Why Women with LAM Have Pain" and was hosted by Stephen Ruoss, MD of Stanford University School of Medicine.