Updated February 20, 2025
THE LAM FOUNDATION STRATEGIC PLAN 2026-2030
The Board of Directors of The LAM Foundation Board of Directors are leading a planning process that includes our LAM communities – LAM patients and families, Clinicians, Researchers, Staff members, Volunteers, and Board members – to develop a Strategic Plan that will help guide our work from 2026 to 2030.
A strategic planning effort aligns our day-to-day actions with our mission and goals. It serves as an accountability tool prioritizing our activities, services, and programs to accomplish our stated goals. A focused plan allocates our scarce resources in a more efficient manner, fosters better communication with our LAM communities, develops adaptability to changes in our environment, and enhances and simplifies decision-making across the board.
The initiative is being led by Chief Mission Officer and Vice Chair of the Board of Directors Lyndsay Hoy, MD. Supported by the Interim Executive Director/future Executive Director and other members of the Board and LAM communities, we are hoping to renew our mission, vision, and values statements. We are working to develop major goals and subsequent subgoals, strategies and tactics that will guide our work over the next five years.
In keeping with our 30th Year Anniversary, we are taking the time to thoughtfully, inclusively and transparently plan our near future ensuring sustainability, innovation, and enhanced organizational capacity to face the next 30 years of progress. We invite you to join us in this endeavor!
DRAFT Mission, Vision, Values, and Goals
As a starting point, the Board of Directors drafted the following revised statements:
Mission:
The LAM Foundation urgently seeks new treatments and a cure for LAM.
Vision:
A future without LAM.
Values:
The following values anchor our commitment to advancing our mission and improving lives in the LAM Community:
- Patient-Centered Innovation – Our organizational decisions are driven by LAM patient priorities. We invest in and promote scientific innovation, discovery, and clinical excellence to improve outcomes for those affected by LAM.
- Advancing Awareness and Advocacy – We actively advocate for the resources, policies, and support essential to fulfilling our mission and championing the needs of women affected by LAM.
- Women’s Health in Rare Diseases -We recognize and embrace our distinct role in addressing the intersection of rare diseases and women’s health and strive to elevate awareness and specialized support.
- Collaborating for a Cure – We achieve our goals by fostering a collaborative environment and working closely with stakeholders, trusted partners, and dynamic alliances to create meaningful progress.
- Integrity and Trust – We earn and uphold the trust of patients, care providers, researchers, clinicians, staff, volunteers, and donors through unwavering integrity in every aspect of our work.
Draft Strategic Goals (2026-2030):
Fortifying The LAM Foundation
Accelerating Innovative Research
Maximizing Comprehensive Care and Quality of Life
Advancing Women’s Health in Rare Disease
Timeline of Activities:
The Board appointed four subcommittees to work on the goals, create sub-goals or objectives under each, and sketch out the strategies and tactics, needed resources, and assign responsibilities. These sketches will be worked on at a Saturday, March 1 Strategic Planning Retreat in Philadelphia that includes members of the Board of Directors, Staff, LAM patients and family members, Researchers, and Clinicians. Dr. Marina Holz will be leading the retreat and guiding the ongoing work of the subcommittees.
Post retreat, the subcommittee members will be set to work from March through the end of May. Their tactics may include focus groups, surveys, and other strategies to gain input from our LAM communities and stakeholders. Subcommittee members include members of the Board, Staff, LAM patients, Researchers, and Clinicians – all chosen for their expertise in the subcommittee focus. We are very grateful to the caring, dedicated people who have volunteered to work on these four subcommittees.
Over the summer of 2025, our strategic planning facilitator and consultant, Dr. Marina Holz, will incorporate all the feedback into a draft plan for Board review and for presentation to our LAM communities at the September 26-28, 2025, International LAM Science Conference and LAMposium in Kansas City, MO. That feedback avenue will finalize the recommendations to the Board of Directors at their December 2025 meeting for approval, budget allocations, and 2026 work plan.