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How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

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Topics: diagnosis        Categories: Patient Profiles

Recent Articles

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Concerns About the Coronavirus (COVID-19) - A Portuguese Translation

Posted on March 16, 2020   |   

Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões de Oliveira, vice-presidente da Associação dos Portadores de Linfangioleiomiomatose do Brasil, com a permissão da LAM Foundation.

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Topics: Coronavirus COVID19        Categories: News
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2020 International LAM Research Conference & LAMposium CANCELLED

Posted on March 05, 2020   |   

It is with deep regret that The LAM Foundation has made the decision to cancel the 2020 International LAM Research Conference and LAMposium in Cincinnati, Ohio.

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Topics: CANCELLED LAMposium 2020        Categories: News
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Concerns About the Coronavirus (COVID-19) Updated 03.18.20

Posted on March 04, 2020   |   

The LAM Foundation is closely monitoring the rapidly evolving developments regarding COVID-19. Read more to learn updates about recommendations from the Medical and Scientific Advisory Board of The LAM Foundation and from the Centers for Disease Control and Prevention (CDC).

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Topics: CDC Coronavirus LAMposium 2020        Categories: News
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The LAM Foundation 2019 Achievements

Posted on January 13, 2020   |   

With the generous support of donors, volunteers, and the broader LAM community, The LAM Foundation continues to pursue new milestones in LAM research, patient support, and access to expert care. The collective efforts of scientists, clinicians, and patients through Foundation programs provide a source of hope for individuals affected by this rare and devastating disease. In 2019, we strategically built upon proven methods of progress while also innovating to maximize new technologies and opportunities.

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Categories: News
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The LAM Foundation 2019 Grant Awardees

Posted on January 06, 2020   |   

The LAM Foundation is proud to announce our 2019 Grant Award winners, which this year resulted in funding three LAM research projects. We are also pleased to announce three additional “Seed Grants” this year for a total of $410,000. The Penn Medicine Orphan Disease Center also announced the winner of the 2019 Million Dollar Bike Ride Research Grant Award. Thanks to The LAM Foundation’s Easy Breathers Cycling Team and all those who donated to the Million Dollar Bike Ride, one LAM researcher received a grant award of $72,704. This was the sixth consecutive year for the MDBR, which has awarded more than $592,000 to LAM research projects.

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Categories: News
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