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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

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The LAM Foundation Statement on Masks and Social Distancing for COVID-19

Posted on May 28, 2021   |   

On May 16, 2021 the Centers for Disease Control and Prevention (CDC) released updated guidance for individuals who have been fully vaccinated (at least two weeks following the full course of your vaccination) against COVID-19. According to this guidance, fully vaccinated individuals can resume normal activities without wearing a mask or social distancing.

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Topics: COVID-19        Categories: Educational Resources
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Worldwide LAM Awareness Month 2021

Posted on May 26, 2021   |   

June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM. 

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Topics: Worldwide LAM Awareness Month WWLAM        Categories: News
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Online Giving in the Digital Age

Posted on May 21, 2021   |   

In the fall of 2019, The LAM Foundation launched a new online donation and fundraising platform, Classy. The launch proved to

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Topics: Donations WWLAM        Categories: Educational Resources
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You're Invited to LAMposium in Your Living Room on June 2, 2021

Posted on May 19, 2021   |   

This presentation will provide an overview of oxygen basics, assessing the need for oxygen, what to expect from your provider, integrating oxygen into your fitness routine, and future trends in oxygen reimbursement and access. This session will also highlight the patient experience and offer a demonstration and review of various oxygen systems. A group discussion will follow the presentations.

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Topics: LAMposium in Your Living Room WWLAM        Categories: Events
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A Million Ways to Participate in The Million Dollar Bike Ride 2021

Posted on May 14, 2021   |   

The LAM Foundation Easy Breathers Cycling Team, led by LAM patients and families, has been a staple of the Million Dollar Bike Ride (MDBR) since its inception. Together, LAM Easy Breathers, the University of Pennsylvania, and The LAM Foundation have raised more than $665,000 in 7 years for LAM research through The Million Dollar Bike Ride. This money is distributed in a

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Topics: LAM Research Million Dollar Bike Ride        Categories: Events
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