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Featured Article

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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

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A Gift More Than 40 Years in the Making  

Posted on October 14, 2021   |   

Wendy Sellers, a 30-year-old wife and mother, had been struggling for months with unexplained lung issues before she finally received a LAM diagnosis. It was the early 1980s, when doctors knew little about the disease. Her husband, Rick, and father-in-law, Dr. John Sellers, wanted her to receive the most advanced care available at the time. Wendy traveled to the Mayo Clinic, where she participated in early LAM studies, and her journey was chronicled in The New England Journal of Medicine. 

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Topics: Planned Giving        Categories: Patient Profiles
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Legacy for a Sisterhood

Posted on October 07, 2021   |   

Shellie Owens, a longstanding supporter and volunteer for The LAM Foundation, never let her LAM diagnosis stop her from doing everything she could to support her fellow LAM patients. The LAM sisterhood became her passion and focus. Prior to the launch of the LAM Liaison Patient & Family Network, Shellie partnered with our LAM Clinic at Stanford to begin what is now our longest-running regional patient support group.

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Topics: Planned Giving        Categories: Patient Profiles
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Sirolimus Gave Stephanie a Second Chance

Posted on September 02, 2021   |   

Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a collapsed lung. Diagnosed with LAM, she was told she needed a lung transplant that week. She was beyond frightened. 

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Topics: DayofGiving Research        Categories: Patient Profiles
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The LAM Foundation Statement on Additional Dose of COVID-19 Vaccine

Posted on August 18, 2021   |   

On August 12, 2021 the United States Food and Drug Administration (FDA) modified the Emergency Use Authorizations (EUAs) for the mRNA COVID-19 vaccines (Pfizer and Moderna) to allow for the administration of an additional dose (i.e., a third dose) after an initial two-dose primary mRNA COVID-19 vaccine series for certain immunocompromised people. This amendment was subsequently endorsed by the Centers for Disease Control and Prevention (CDC) on August 13, 2021.

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Topics: COVID-19        Categories: News
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Coronavirus Update: Town Hall Recording Available

Posted on August 16, 2021   |   

Medical experts from the TSC Alliance and The LAM Foundation discussed the recent announcement from the FDA authorizing additional vaccine doses and the implications for TSC and LAM communities. They also provided an update on the Delta variant and current mask recommendations.

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Topics: COVID-19        Categories: Events
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