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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

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How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

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Topics: diagnosis        Categories: Patient Profiles
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Save the Date: 2022 International LAM Research Conference & LAMposium

Posted on January 16, 2022   |   

The LAM Foundation is pleased to announce the 2022 International LAM Research Conference & LAMposium will be held September 8 – 11, 2022.

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Topics: LAMposium        Categories: Events News
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COVID-19 Updates for the LAM Community: Outcomes, Omicron, and Other Options

Posted on January 11, 2022   |   

Another new year comes with a new wave of COVID-19 infections brought on by another variant of the SARS-CoV-2 virus. This new variant, named Omicron, carries several different mutations in the spike protein compared to the prior variants, and is highly transmissible. While there is a lot of uncertainty regarding the severity of infections from this variant, the degree of protection afforded by the current vaccinations, and the future with regards to COVID-19, the basic rules regarding protection from severe disease are still the same. The following summarizes and updates key concepts related to COVID-19 that are relevant to individuals with LAM.

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Topics: Coronavirus COVID-19        Categories: News
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How a LAM Patient Became a Scientist to Help Find a Cure

Posted on December 13, 2021   |   

Beth Daugherity had been suffering lung and breathing issues for years. After a lung collapse and months of pain, she consulted several doctors to figure out what was wrong. They told her the symptoms were likely caused by her anxiety, weight, gallbladder -- even the altitude. All the while, she was keeping close track of her lung problems, which always seemed to worsen with her menstrual cycle. Beth’s analytical mind told her this was no coincidence. Still, she had trouble convincing doctors she was onto something.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles
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Matching Gifts: An Easy Way to Multiply Your Gift

Posted on October 20, 2021   |   

When Jennifer Fujikawa was diagnosed with LAM in 2015, she reached out to The LAM Foundation for online information, resources, and patient support programs. Since then, the Foundation has been Jennifer’s source of hope – and the LAM community is like her extended family. Jennifer is an active fundraiser for the Foundation, writing letters to friends and family to tell her story and ask for their help to find a cure for LAM.

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Topics: Fundraising Matching Gifts        Categories: Educational Resources
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