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Featured Article


How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

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Topics: diagnosis        Categories: Patient Profiles

Recent Articles

Articles for tag Community Engagement

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How a LAM Patient Became a Scientist to Help Find a Cure

Posted on December 13, 2021   |   

Beth Daugherity had been suffering lung and breathing issues for years. After a lung collapse and months of pain, she consulted several doctors to figure out what was wrong. They told her the symptoms were likely caused by her anxiety, weight, gallbladder -- even the altitude. All the while, she was keeping close track of her lung problems, which always seemed to worsen with her menstrual cycle. Beth’s analytical mind told her this was no coincidence. Still, she had trouble convincing doctors she was onto something.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles

Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles