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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

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Articles for tag Coronavirus

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COVID-19 Updates for the LAM Community: Outcomes, Omicron, and Other Options

Posted on January 11, 2022   |   

Another new year comes with a new wave of COVID-19 infections brought on by another variant of the SARS-CoV-2 virus. This new variant, named Omicron, carries several different mutations in the spike protein compared to the prior variants, and is highly transmissible. While there is a lot of uncertainty regarding the severity of infections from this variant, the degree of protection afforded by the current vaccinations, and the future with regards to COVID-19, the basic rules regarding protection from severe disease are still the same. The following summarizes and updates key concepts related to COVID-19 that are relevant to individuals with LAM.

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Topics: Coronavirus COVID-19        Categories: News
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Concerns About the Coronavirus (COVID-19) - A Portuguese Translation

Posted on March 16, 2020   |   

Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões de Oliveira, vice-presidente da Associação dos Portadores de Linfangioleiomiomatose do Brasil, com a permissão da LAM Foundation.

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Topics: Coronavirus COVID19        Categories: News
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Concerns About the Coronavirus (COVID-19) Updated 03.18.20

Posted on March 04, 2020   |   

The LAM Foundation is closely monitoring the rapidly evolving developments regarding COVID-19. Read more to learn updates about recommendations from the Medical and Scientific Advisory Board of The LAM Foundation and from the Centers for Disease Control and Prevention (CDC).

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Topics: CDC Coronavirus LAMposium 2020        Categories: News