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Featured Article

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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

Articles for tag WWLAM

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Life with LAM | Kristy Hope

Posted on June 01, 2022   |   

Kristy is a stay-at-home mom from Australia, who was diagnosed with LAM at the age of 26.

"Despite all of this, my perspective on life has improved since being diagnosed with LAM. Before LAM, I was pretty much cruising. I didn’t have many ambitions, other than living out of my parents’ home and perhaps traveling somewhere some time. Instead, I met a wonderfully supportive man, had a baby, bought a house, traveled abroad, became involved in fulfilling ministerial work, and am not afraid to “have the fear” and just go for it! No point in worrying about tomorrow (within reason)! Before we know it, we’ll be old and without any memories worth recalling."

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Topics: WWLAM        Categories: Patient Profiles
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Life with LAM | Sarah Poitras

Posted on June 01, 2022   |   

Sarah is an avid traveler and patient advocate from New York who was diagnosed with LAM at the age of 30.

"Since my LAM diagnosis, my husband and I have visited nearly 60 countries together, spent over a year on the road, and lived for four years in Europe. Travel inspires and challenges me and has helped both of us cope with me having this disease."

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Topics: WWLAM        Categories: Patient Profiles
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Life with LAM | Karen Kinsey

Posted on June 01, 2022   |   

Karen is a Trust & Estate Administrator from Virginia, who was diagnosed with LAM at the age of 45.

“When I think about the last 19 years, I am most grateful for the NIH, The LAM Foundation, and the numerous LAM researchers who have made a difference in the lives of so many women living with LAM. These groups are constantly striving to do more to benefit us. In late ’18, The LAM foundation initiated the Circle of Hope program to help women who are exploring lung transplantation. I feel fortunate knowing these resources are working to better the lives of women living with LAM.”

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Topics: WWLAM        Categories: Patient Profiles
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Worldwide LAM Awareness Month 2021

Posted on May 26, 2021   |   

June has been designated Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM, and share our global achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM. 

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Topics: Worldwide LAM Awareness Month WWLAM        Categories: News
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Online Giving in the Digital Age

Posted on May 21, 2021   |   

In the fall of 2019, The LAM Foundation launched a new online donation and fundraising platform, Classy. The launch proved to

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Topics: Donations WWLAM        Categories: Educational Resources
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