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Featured Article

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How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

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Topics: diagnosis        Categories: Patient Profiles

Recent Articles

Articles for tag LAMposium 2016

LAMposium Means Hope

Posted on March 17, 2017   |   

After several months of suffering from shortness of breath, I asked a friend of mine, who is a doctor, what he thought I should do. He told me to get a chest X-ray; that is when I started to worry because my X-rays revealed that something was wrong with my lungs. He referred me to a specialist and told me to get a CT scan before going to the specialist’s office. On August 3, I was diagnosed with this rare disease I could not even pronounce: lymphangioleiomyomatosis – LAM. My pulmonologist explained what he knew about the disease and of course I was devastated.

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Topics: LAMposium 2016        Categories: Events
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Breath of Hope Gala

Posted on October 19, 2016   |   

This year’s Breath of Hope Gala was a complete sell out with over 410 people in attendance! And with a crowd like that, everything was “off the charts”!

Our Breath of Hope Silent Auction tables had 50 fabulous donated items up for bid, generating well over $9,000. That’s $4,000 + more than last year!

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Topics: Fundraising LAMposium 2016        Categories: Events
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RLDC 2016 LAMposium

Posted on October 19, 2016   |   

The 2016 Rare Lung Diseases Research Conference, LAMposium and Breath of Hope Gala took place last week and we are hearing it was one of the most successful gatherings, to date, for The LAM Foundation community. If you were able to join us, we are thrilled we could all spend time together. If you were unable to attend, we hope to see you next year and want to share some highlights from the conference.

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Topics: Education Events LAMposium 2016        Categories: Events