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Featured Article

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Matching Gifts: An Easy Way to Multiply Your Gift

Posted on October 20, 2021   |   

When Jennifer Fujikawa was diagnosed with LAM in 2015, she reached out to The LAM Foundation for online information, resources, and patient support programs. Since then, the Foundation has been Jennifer’s source of hope – and the LAM community is like her extended family. Jennifer is an active fundraiser for the Foundation, writing letters to friends and family to tell her story and ask for their help to find a cure for LAM.

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Topics: Fundraising Matching Gifts        Categories: Educational Resources

Recent Articles

Articles for category Patient Profiles

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Sirolimus Gave Stephanie a Second Chance

Posted on September 02, 2021   |   

Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a collapsed lung. Diagnosed with LAM, she was told she needed a lung transplant that week. She was beyond frightened. 

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Topics: DayofGiving Research        Categories: Patient Profiles
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Active Mother of Three Advances LAM Research

Posted on August 16, 2021   |   

Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she wouldn't be able to keep up with her energetic children. In 2018, she needed a hysterectomy and donated her uterus for LAM research. Carol’s tissue donation proved helpful to scientists asking the question "Where do LAM cells come from?"  For the first time, in the form of single cell RNA sequencing, researchers now have a technique that is powerful enough to help us get closer to answering this fundamental question.

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Topics: DayofGiving FundACure        Categories: Patient Profiles
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Life with LAM | Brenda Esparza Solis

Posted on June 25, 2021   |   

Cosmetologist | Mexico 

“Since my LAM diagnosis, my life has changed completely. From leading to my divorce – because I was misunderstood by my partner – to learning to appreciate every second and every small thing that happens to me. Day by day, I appreciate life more. I don’t take it for granted. LAM also led to my issues with anxiety. That

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Topics: #WWLAM        Categories: Patient Profiles
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Life with LAM | Beverly Holtzman

Posted on June 18, 2021   |   

Lung Transplant Recipient | Canada

“Living with LAM has been eye-opening. One day you think you’re fine, and the next day you have a rare disease with no cure, and you will need a double lung transplant at some point. Before undergoing that double lung transplant in 2017, I had LAM for 15 years. While coping with the disease, I used to work

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Topics: #WWLAM        Categories: Patient Profiles
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Life with LAM | Maria Jose Salazar

Posted on June 11, 2021   |   

Sworn Translator and Interpreter | Guatemala City, Guatemala 

“I was diagnosed with LAM when I started to feel short of breath. Nothing else had happened to me, but two weeks later the real journey started. In a period of one week, I suffered two pneumothoraces and had pleurodesis performed. My world fell into pieces when I realized what was

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Topics: #WWLAM        Categories: Patient Profiles
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