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Featured Article

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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

Author: Caroline Currie, Digital Outreach Coordinator

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Save the Date: 2022 International LAM Research Conference & LAMposium

Posted on January 16, 2022   |   

The LAM Foundation is pleased to announce the 2022 International LAM Research Conference & LAMposium will be held September 8 – 11, 2022.

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Topics: LAMposium        Categories: Events News
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Sirolimus Gave Stephanie a Second Chance

Posted on September 02, 2021   |   

Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a collapsed lung. Diagnosed with LAM, she was told she needed a lung transplant that week. She was beyond frightened. 

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Topics: DayofGiving Research        Categories: Patient Profiles
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Coronavirus Update: Town Hall Recording Available

Posted on August 16, 2021   |   

Medical experts from the TSC Alliance and The LAM Foundation discussed the recent announcement from the FDA authorizing additional vaccine doses and the implications for TSC and LAM communities. They also provided an update on the Delta variant and current mask recommendations.

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Topics: COVID-19        Categories: Events
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Active Mother of Three Advances LAM Research

Posted on August 16, 2021   |   

Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she wouldn't be able to keep up with her energetic children. In 2018, she needed a hysterectomy and donated her uterus for LAM research. Carol’s tissue donation proved helpful to scientists asking the question "Where do LAM cells come from?"  For the first time, in the form of single cell RNA sequencing, researchers now have a technique that is powerful enough to help us get closer to answering this fundamental question.

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Topics: DayofGiving FundACure        Categories: Patient Profiles
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Join us for the 2021 LAM Research Virtual Conference

Posted on August 15, 2021   |   

Please join us for the 2021 LAM Research Virtual Conference, Transforming our Understanding of LAM: The Path Forward, on Friday, August 20, 2021, at 11:00 AM ET (3:00 PM GMT). This workshop, chaired by Dr. Scott Budinger, Chief of Pulmonary and Critical Care in the Department of Medicine at Northwestern University Feinberg

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Topics: Research        Categories: Events
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