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Featured Article

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Fighting for a LAM Diagnosis and Now a Cure

Posted on August 05, 2022   |   

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started coughing up blood clots with exertion or exercise. I went to several pulmonologists, but no one could find anything. On a family trip to Greece in 2014, I had a severe episode while swimming with my daughters. I couldn’t breathe, I became dizzy and almost passed out.  I spent two days in bed without being able to move. The

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Categories: Patient Profiles

Recent Articles

Author: Anne McKenna - Community Manager

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We Need Your Help to Fund LAM Research

Posted on August 03, 2018   |   

"The LAM community should be incredibly proud of the Foundation’s continuing role in fast-tracking the best LAM research” – Elizabeth Henske, MD

We need your help to fund LAM research. The LAM Foundation is the global leader in the fight against lymphangioleiomyomatosis (LAM). We are dedicated to finding safe and effective treatments, and ultimately a cure, for women living with LAM. By donating today, you can help give “A Breath of Hope” to women with LAM across the globe. 100% of your gift will go directly to LAM research.

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Topics: LAM Research        Categories: News
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Single Cell RNA Sequencing Allows Comprehensive Study of the Genetic Programs of All Cell Types in a Diseased Human Lung

Posted on July 23, 2018   |   

Studying LAM biological behavior in the laboratory is difficult because the model-based approaches that have been so vital to progress in other diseases have simply not been very good in LAM. There are many reasons for the inadequacy of LAM cell models, including that we don’t know the origin of the LAM cell, and that LAM cells grow slowly, change their signature functions with time in a dish, are often outcompeted by other cells in culture, and do not survive well through multiple passages. Immortalizing LAM cells with viruses can keep them alive but alters them in unpredictable and inauthentic ways. LAM animal models are also problematic; there is no known naturally occurring model of LAM other than in humans, and because we don’t know where LAM starts in the body, we don’t know what cell to target with our genetic manipulations.

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Topics: Single Cell Analysis        Categories: Educational Resources
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Why We Ride: Million Dollar Bike Ride

Posted on March 29, 2018   |   

Joe & Mary Van Brackel share a bit about their experience participating in the Million Dollar Bike Ride sponsored by the Penn Medicine Orphan Disease Center.

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Categories: Events
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HOPE 2.0

Posted on March 09, 2018   |   

CEO, Sue Sherman talks about the significance of the recent Patient Benefit Conference and how The LAM Foundation is embarking on HOPE 2.0.  

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Topics: Patient Benefit Conference        Categories: Events
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2017 Was a Good Year!

Posted on December 27, 2017   |   

With your support, The LAM Foundation continues to grow and be both a champion and innovator for LAM patients and their families. 2017 was once again a busy year at The LAM Foundation, as we continue to accelerate research and to improve patient care.

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Topics: 2017        Categories: News
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