Posted on June 09, 2017 |
June 2017 has been designated as the first Worldwide LAM Awareness Month (WWLAM) by the Worldwide LAM Patient Coalition. WWLAM brings together the global community in a collaborative effort to educate the world about the signs and symptoms of LAM, raise funds to support women living with LAM and share our achievements to inspire researchers and clinicians to optimize therapies and find a cure for LAM.
FLAM Association (France Lymphangioléiomyomatose) was founded in July 2001 by Michèle Gonzalves and communicates with approximately 160 patients. The head office is based in Gosselming (Moselle, department 57). The Council has 10 members, all volunteers.
FLAM works in close collaboration with the Reference Centre for Rare Pulmonary Diseases in Lyon with Professor Vincent Cottin.
The Association organizes regional meetings along with an annual meeting allowing patients to meet and share experiences. The association also provides information (medical updates, brochures and newsletters) and offers support and help when necessary. Several members raise funds for the association by making jewelry, jams, marmalade, cakes and other objects for sale.
Today, FLAM patients would like better medical and personal recognition.
To learn more about FLAM visit their website at www.francelam.org or check out their Facebook page at www.facebook.com/assocflam.