Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a collapsed lung. Diagnosed with LAM, she was told she needed a lung transplant that week. She was beyond frightened. 

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On August 12, 2021 the United States Food and Drug Administration (FDA) modified the Emergency Use Authorizations (EUAs) for the mRNA COVID-19 vaccines (Pfizer and Moderna) to allow for the administration of an additional dose (i.e., a third dose) after an initial two-dose primary mRNA COVID-19 vaccine series for certain immunocompromised people. This amendment was subsequently endorsed by the Centers for Disease Control and Prevention (CDC) on August 13, 2021.

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Medical experts from the TSC Alliance and The LAM Foundation discussed the recent announcement from the FDA authorizing additional vaccine doses and the implications for TSC and LAM communities. They also provided an update on the Delta variant and current mask recommendations.

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Carol is always on the move as a mom of three. She was diagnosed with LAM in 2018 and was concerned she wouldn't be able to keep up with her energetic children. In 2018, she needed a hysterectomy and donated her uterus for LAM research. Carol’s tissue donation proved helpful to scientists asking the question "Where do LAM cells come from?"  For the first time, in the form of single cell RNA sequencing, researchers now have a technique that is powerful enough to help us get closer to answering this fundamental question.

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