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Featured Article

2022_Kim Rondina_Complementary Medicine  Discussion at LAMposium_Cropped.jpg

Complementary Medicine for LAM and Beyond

Posted on January 27, 2023   |   

Our long-awaited attendance at our first LAMposium was truly an experience to remember.  Being a loved one of a woman with LAM and a physical therapist, I appreciated the uniqueness of coming together as an entire community including women with LAM, loved ones, medical/research professionals, and LAM Foundation leadership all under one roof. 

And the first day taught me much more than the knowledge and expertise shared by the variety of presenters.  I learned that women with LAM and

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Categories: Educational Resources

Recent Articles

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A Rare Public Health Challenge

Posted on February 01, 2023   |   

Most public health challenges may seem obvious. The COVID-19 pandemic, for example, swept the globe and in some way touched the lives of everyone. But not all public health challenges are as readily apparent.

Rare diseases are a case in point. While individually each disease is rare, collectively rare diseases are common: More than 10,000 rare diseases affect nearly 400 million people worldwide. In the United States, the prevalence of rare diseases (over 30 million people) rivals or

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Categories: Educational Resources
2022_Kim Rondina_Complementary Medicine  Discussion at LAMposium_Cropped.jpg

Complementary Medicine for LAM and Beyond

Posted on January 27, 2023   |   

Our long-awaited attendance at our first LAMposium was truly an experience to remember.  Being a loved one of a woman with LAM and a physical therapist, I appreciated the uniqueness of coming together as an entire community including women with LAM, loved ones, medical/research professionals, and LAM Foundation leadership all under one roof. 

And the first day taught me much more than the knowledge and expertise shared by the variety of presenters.  I learned that women with LAM and

Read More

Categories: Educational Resources
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LAMposium in your Living Room recording is now available

Posted on December 14, 2022   |   
Author: Cora Arney

Thank you for your interest in our recent LAMposium in Your Living Room (LYLR) educational webinar, “Henske & Hammes Research Report: Highlights from the 2022 International LAM Research Conference,” presented by Elizabeth Henske, MD, and Stephen Hammes, MD, PhD.
A video recording of this session is now available. Click below to find this video as well as recordings from previous presentations in this educational series.

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Categories: News
Kristin, Samantha, Denise, Lauren Grassi

I couldn’t “fix” LAM, so I’m raising money for those who can | by Denise Grassi

Posted on December 12, 2022   |   

In November 2020, my 24-year-old daughter Kristin was diagnosed with LAM.  As a mother, I’m used to fixing problems for my children. But this was one I simply couldn’t fix. So, I went into fundraising mode to help my daughter.

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Categories: Patient Profiles
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Where there once was fear, there is now hope | Meagan Knight

Posted on December 01, 2022   |   

In 2020, Meagan Knight was a young newlywed, working as a nurse in a hospital COVID-19 unit when her lungs collapsed. No, it wasn’t COVID-19. It was lymphangioleiomyomatosis (LAM). Suddenly, Meagan wasn’t the one helping others, but the one needing help. 

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Categories: Patient Profiles
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