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Featured Article

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How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

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Topics: diagnosis        Categories: Patient Profiles

Recent Articles

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Life with LAM | Kristy Hope

Posted on June 01, 2022   |   

Kristy is a stay-at-home mom from Australia, who was diagnosed with LAM at the age of 26.

"Despite all of this, my perspective on life has improved since being diagnosed with LAM. Before LAM, I was pretty much cruising. I didn’t have many ambitions, other than living out of my parents’ home and perhaps traveling somewhere some time. Instead, I met a wonderfully supportive man, had a baby, bought a house, traveled abroad, became involved in fulfilling ministerial work, and am not afraid to “have the fear” and just go for it! No point in worrying about tomorrow (within reason)! Before we know it, we’ll be old and without any memories worth recalling."

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Topics: WWLAM        Categories: Patient Profiles
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Life with LAM | Sarah Poitras

Posted on June 01, 2022   |   

Sarah is an avid traveler and patient advocate from New York who was diagnosed with LAM at the age of 30.

"Since my LAM diagnosis, my husband and I have visited nearly 60 countries together, spent over a year on the road, and lived for four years in Europe. Travel inspires and challenges me and has helped both of us cope with me having this disease."

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Topics: WWLAM        Categories: Patient Profiles
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Life with LAM | Karen Kinsey

Posted on June 01, 2022   |   

Karen is a Trust & Estate Administrator from Virginia, who was diagnosed with LAM at the age of 45.

“When I think about the last 19 years, I am most grateful for the NIH, The LAM Foundation, and the numerous LAM researchers who have made a difference in the lives of so many women living with LAM. These groups are constantly striving to do more to benefit us. In late ’18, The LAM foundation initiated the Circle of Hope program to help women who are exploring lung transplantation. I feel fortunate knowing these resources are working to better the lives of women living with LAM.”

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Topics: WWLAM        Categories: Patient Profiles
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How a LAM diagnosis changed a 17-year-old's life

Posted on April 28, 2022   |   
Author: Ronni Berke

When spring arrives, most high school seniors are gearing up for graduation, prom, and going away to college. Not so for 17-year-old Adrianaliz, who was in the hospital, unable to breathe. When she found out she had LAM, her heart shattered. The teenager spent her last two months of high school with a chest tube, missing her birthday and other memorable moments, including the final days of her beloved grandmother.

Read More

Topics: diagnosis        Categories: Patient Profiles
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Save the Date: 2022 International LAM Research Conference & LAMposium

Posted on January 16, 2022   |   

The LAM Foundation is pleased to announce the 2022 International LAM Research Conference & LAMposium will be held September 8 – 11, 2022.

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Topics: LAMposium        Categories: Events News
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