This interactive educational webinar series features a broad range of topics presented by LAM experts. These sessions offer a remarkable opportunity to interact with clinicians, scientists, patients, and other members of our global LAM community. Registration is free and open to all.
Our LAMposium in Your Living Room educational series is sponsored by NDRI.
Check our events calendar and watch your inbox for date and speaker updates. Upcoming Presentations to be Announced.
Past Recordings
LAM Patient Priorities Survey (LAM-PREP) Findings
Brenna Lanton, DPT and Jennifer Miles, PT • Wednesday, February 12, 2025 – 7:00 PM ET 4:00 PM PT
Dr. Marina Holz presented findings from the LAM Patient Research Priorities Survey (LAM-PREP.) Last year, 754 members of the LAM community responded to this important survey. Learn what insights were gained and their impact on the Foundation’s research efforts and strategic planning process.
LAM and The Pelvic Floor Connection
Brenna Lanton, DPT and Jennifer Miles, PT • Wednesday, December 4, 2024 – 7:00 PM ET 4:00 PM PT
Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.
Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.
Imaging Findings in LAM & TSC
Donald G. Benson, Jr, MD, PhD, Joseph Barney, MD, and Nishant Gupta, MD • Thursday, June 20, 2024 – 7:00 PM ET 4:00 PM PT
Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation
LAM Science Research Update + Rapamycin: From Fruit Flies to Easter Island, and MILES To Go
Vera Krymskaya, PhD, MBA and Rob Kotloff, MD • Wednesday, March 6, 2024 – 7:00 PM ET 4:00 PM PT
Dr. Vera Krymskaya, Scientific Director for The LAM Foundation presented the roadmap for LAM research as we continue to move forward in our fight for a cure.
In addition, LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and provided updates on what we know about its management and effectiveness.Click here to read the Q&A responses from the chat box.
Exercising with LAM: How to be LAMFit!
Mary Beth Brown, PT, PhD, and Claire E. Child, DPT, MPH • Wednesday, December 6, 2023 – 7:00 PM ET 4:00 PM PT
Mary Beth Brown, PT, PhD, and Claire E. Child, DPT, MPH, launched the new home-based exercise program and app, LAMFit. LAMFit is an innovative digital fitness program designed specifically for individuals with LAM to help them increase their daily physical activity. LAMFit participants will use a fitness tracker, activity goal setting, and reminder messaging to monitor and increase physical activity over six months. Participants will also have the option to join a private, online LAMFit community engagement forum with weekly discussion topics and peer support.
Mary Beth Brown, PT, PhD
Dr. Brown is an Associate Professor in the Department of Rehabilitation Medicine, Division of Physical Therapy, at the University of Washington. She earned her doctorate in applied physiology at the Georgia Institute of Technology and was a postdoctoral fellow in Indiana University’s pulmonary and critical care medicine program. Her recent research focuses on exercise responses in pulmonary vascular disease and interstitial lung disease. Dr. Brown’s sensitivity to the needs of LAM patients as it relates to exercise and fatigue, resulted in an innovative study and publication regarding the health benefits of exercise for women with LAM. This groundbreaking research ultimately led to the development of the LAMfit digital fitness program.
Claire E. Child, PT, DPT, MPH
Claire E. Child is a physical therapist and a teaching associate in the Department of Rehabilitation Medicine at the University of Washington. She is an American Board of Physical Therapy Specialties-certified clinical specialist in cardiovascular and pulmonary physical therapy with clinical interests in advanced heart/lung diseases and cardiovascular, pulmonary, and oncology rehabilitation. Claire has over 10 years of clinical experience in large urban academic medical centers and critical care settings. Her research interests include helping patients with lymphangioleiomyomatosis and other interstitial lung diseases to safely participate in exercise as part of their health management.
Deep breath . . . BLAST IT! Understanding Your Pulmonary Function Tests
Dr. George Pappas, MD, MPH • Wednesday, March 1, 2023 – 7:00 PM ET 4:00 PM PT
As follow-up to his standout presentation at the 2022 International LAM Research Conference & LAMposium, Dr. George Pappas discusses the ins and outs of pulmonary function tests (PFTs)—what the many numbers mean, which ones are most closely followed in LAM, and how the numbers can be used to understand more about lung health and to measure disease progression over time.
George Pappas, MD, MPH
Dr. George Pappas is board certified in internal medicine, pulmonary medicine, critical care medicine, and occupational medicine. He provides care to patients with all types of lung disease, including asthma, emphysema, lung cancer, and interstitial lung disease. Dr. Pappas has a special interest in rare lung diseases and for many years has been the LAM Clinic Director in Seattle, Washington.
Henske & Hammes Research Report: Highlights from the 2022 International LAM Research Conference
Lisa Henske, MD, and Stephen Hammes, MD, PhD
Please enjoy this video with our LAM Research Conference Co-Chairs, Drs. Elizabeth Henske and Stephen Hammes. They discuss highlights and key takeaways from the scientific presentations, panel discussions, research posters, and abstracts presented at the conference. Topics include clinical trial design, quantitative biomarkers, the potential effects of hormones on LAM, and more.
Lisa Henske, MD
Dr. Elizabeth Henske is the Director of the Center for LAM Research and Clinical Care at Brigham and Women’s Hospital. She is Professor of Medicine at Harvard Medical School, an Associate Member of the Broad Institute of MIT and Harvard, and a practicing medical oncologist at the Dana-Farber Cancer Institute. Dr. Henske’s laboratory discovered that LAM is caused by mutations in the tuberous sclerosis complex (TSC) genes. She also was the first to discover that the TSC1 and TSC2 proteins physically interact. Her research laboratory is focused on the cellular, metabolic, and immunologic mechanisms underlying the pathogenesis of angiomyolipomas and LAM.
Stephen Hammes, MD, PHD
Dr. Stephen Hammes received his M.D. and Ph.D. in Immunology and Microbiology from Duke University, followed by a residency in General Medicine and a fellowship in Endocrinology at the University of California in San Francisco. In 1999, Dr. Hammes joined the faculty at the University of Texas Southwestern Medical Center in Dallas, where he was a W.W. Caruth Scholar in Biomedical Research. Dr. Hammes moved to the University of Rochester in 2009 to become the Louis S. Wolk Distinguished Professor of Medicine and the Chief of the Division of Endocrinology, Diabetes, and Metabolism. Dr. Hammes is interested in steroid production and steroid signaling in female and male reproductive tracts as well as in steroid-sensitive tumors. He is interested in both the positive and negative effects of androgens in the ovary, with a focus on the pathophysiology and treatment of Polycystic Ovary Syndrome (PCOS). In addition, Dr. Hammes studies how androgens and other signals promote prostate cancer proliferation. Finally, Dr. Hammes is interested in the origins and pathophysiology of lymphangioleiomyomatosis.
The LAM Foundation: Together We RISE
Sue Sherman, MHA
Enjoy this informative webinar with Sue Sherman, Executive Director and CEO of The LAM Foundation, where she discusses the Foundation’s investments in new research, innovation, support services, and empowerment of our collective LAM community. With input from patients, family members, scientists, clinicians, and partners, the Foundation continues to meet new challenges and direct resources to the most promising mission-driven programs.
Sue Sherman, MHA
Sue Sherman is the CEO of our LAM Foundation. Under her nine years of leadership, the Foundation has distributed more than $5 million in research funding to LAM investigators, hosted seven international research conferences and LAMposiums, implemented an annual in-person scientific advisory board study section, launched and sustained multiple virtual formats for fundraising, education, and collaboration, and effectively integrated the patient voice into research design. Sue is also an active member of the American Thoracic Society’s Public Advisory Roundtable.
As the leader of The LAM Foundation, Sue has developed a deep appreciation for the different perspectives held by patients, family members, clinicians, and scientists, and strives to create opportunities where their many voices can translate into a single mission to cure LAM.
Prior to her role at the Foundation, Sue held senior executive positions where she contributed to the advancement of health and the healthcare industry for more than 20 years. She holds a Master of Health Administration from Xavier University in Cincinnati, Ohio, a Bachelor of Science in biology from Indiana University, and was formerly a certified executive coach.
Hormones, Research, & the Pandemic: Your Questions Answered
Stephen Hammes, MD, PhD, andNishant Gupta, MD
Dr. Hammes discusses his research regarding estrogen and LAM, focusing on the potential role of the uterus as the source of LAM cells in the lungs. He also addresses questions related to hormones, women’s health, and LAM.
Dr. Gupta provideed an update on the current COVID-19 developments that are most relevant to the LAM community. In addition, he discusses some of the other recent exciting advancements in LAM science.
Dr. Stephen Hammes received his M.D. and Ph.D. in Immunology and Microbiology from Duke University, followed by a residency in General Medicine and a fellowship in Endocrinology at the University of California in San Francisco. In 1999, Dr. Hammes joined the faculty at the University of Texas Southwestern Medical Center in Dallas, where he was a W.W. Caruth Scholar in Biomedical Research. Dr. Hammes moved to the University of Rochester in 2009 to become the Louis S. Wolk Distinguished Professor of Medicine and the Chief of the Division of Endocrinology, Diabetes, and Metabolism. Dr. Hammes is interested in steroid production and steroid signaling in female and male reproductive tracts as well as in steroid-sensitive tumors. He is interested in both the positive and negative effects of androgens in the ovary, with a focus on the pathophysiology and treatment of Polycystic Ovary Syndrome (PCOS). In addition, Dr. Hammes studies how androgens and other signals promote prostate cancer proliferation. Finally, Dr. Hammes is interested in the origins and pathophysiology of lymphangioleiomyomatosis.
Nishant Gupta, MD
Nishant Gupta completed his medical school training in India, followed by a residency in internal medicine at the University of Tennessee and a fellowship in the field of Pulmonary and Critical Care Medicine at the University of Cincinnati. In addition, he has completed fellowship training in the field of rare lung diseases as well as a master’s degree in Clinical and Translational Research at the University of Cincinnati.
Dr. Gupta is currently an Associate Professor in the Division of Pulmonary, Critical Care and Sleep Medicine at the University of Cincinnati, where he serves as the director of the interstitial and rare lung diseases program. Dr. Gupta’s clinical and research focus is on the field of rare lung diseases such as LAM, and his work is aimed at better defining the natural history, improving detection, and developing novel treatment modalities and monitoring strategies for LAM patients. He also serves as the scientific director of The LAM Foundation and the director of the international LAM Clinic Network.
Exercise & LAM: What Do We Know Now?
Mary Beth Brown, PT, PhD
We all know that exercise is good for us. But how good? Mary Beth Brown, PT, PhD, discusses the findings of her recently concluded exercise study, what it taught us about exercise and LAM, blood oxygen levels, and the benefits of a home-based exercise program for individuals living with LAM. A group discussion will follow the presentation.
Dr. Brown is an Associate Professor in the Department of Rehabilitation Medicine, Division of Physical Therapy, at the University of Washington. Her research is focused on exercise responses in patients and rodent models of pulmonary disease. Her past research helped to establish exercise recommendations for patients with pulmonary arterial hypertension and cystic fibrosis.
After attending The LAM Foundation Patient Benefit Conference in 2017, it became clear there was an urgent need for research on exercise and fatigue in LAM. Dr. Brown is currently leading a study to examine the impact of a home-based mobile health exercise program for patients with LAM, and to characterize skeletal muscle and skeletal muscle response to exercise in LAM.