Blog | The LAM Foundation

Articles for tag Patient Benefit Conference

Short-Term Goals, Long-Term Effects: Outcomes of the 2017 LAM Patient Benefit Conference

Posted on November 30, 2018 |

How can we improve the lives of LAM patients in five years or less? This is the question scientists, clinicians, and patients themselves gathered to answer at the first-ever LAM Patient Benefit Conference. Among the many valuable ideas shared, the following grant proposals have received funding to move forward. Each was chosen for its potential to result in solutions that will positively impact the diagnosis, care, or quality of life of LAM patients by the year 2023.

Topics: Patient Benefit Conference Research Categories: Events News

HOPE 2.0

Posted on March 09, 2018 |

Author: Anne McKenna - Community Manager

CEO, Sue Sherman talks about the significance of the recent Patient Benefit Conference and how The LAM Foundation is embarking on HOPE 2.0.

Topics: Patient Benefit Conference Categories: Events

Rare Disease Advocates at Work!

Posted on September 29, 2017 |

Author: maria pearson

Global Genes Summit

Development Manager, Katie Jensen recently traveled to the Global Genes Rare Patient Advocacy Summit to learn from and collaborate with other rare disease leaders. Read about what she learned, who she met, and why she’s even more inspired for the Patient Benefit Conference & LAMposium LA!

Topics: Advocacy Global Genes LAMposium LA Patient Benefit Patient Benefit Conference Rare Diesases TS Alliance Categories: Educational Resources