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Articles for category News

Concerns About the Coronavirus (COVID-19) Updated 03.18.20


The LAM Foundation is closely monitoring the rapidly evolving developments regarding COVID-19. Read more to learn updates about recommendations from the Medical and Scientific Advisory Board of The LAM Foundation and from the Centers for Disease Control and Prevention (CDC).

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Tags: CDC Coronavirus LAMposium 2020
Categories: News

Concerns About the Coronavirus (COVID-19) - A Portuguese Translation


Esse documento foi traduzido em 13/3/2020 por Maria Clara Castellões de Oliveira, vice-presidente da Associação dos Portadores de Linfangioleiomiomatose do Brasil, com a permissão da LAM Foundation.

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Tags: Coronavirus COVID19
Categories: News

2020 International LAM Research Conference & LAMposium CANCELLED


It is with deep regret that The LAM Foundation has made the decision to cancel the 2020 International LAM Research Conference and LAMposium in Cincinnati, Ohio.

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Tags: CANCELLED LAMposium 2020
Categories: News

The LAM Foundation 2019 Achievements


With the generous support of donors, volunteers, and the broader LAM community, The LAM Foundation continues to pursue new milestones in LAM research, patient support, and access to expert care. The collective efforts of scientists, clinicians, and patients through Foundation programs provide a source of hope for individuals affected by this rare and devastating disease. In 2019, we strategically built upon proven methods of progress while also innovating to maximize new technologies and opportunities.

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Categories: News

The LAM Foundation 2019 Grant Awardees


The LAM Foundation is proud to announce our 2019 Grant Award winners, which this year resulted in funding three LAM research projects.  We are also pleased to announce three additional “Seed Grants” this year for a total of $410,000. The Penn Medicine Orphan Disease Center also announced the winner of the 2019 Million Dollar Bike Ride Research Grant Award. Thanks to The LAM Foundation’s Easy Breathers Cycling Team and all those who donated to the Million Dollar Bike Ride, one LAM researcher received grant award of $72,704. This was the sixth consecutive year for the MDBR, which has awarded more than $592,000 to LAM research projects.

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Categories: News

Welcoming New Faces to The LAM Foundation


We are very excited to be welcoming a new member to The LAM Foundation team as well as congratulating a current one one a new role! Join us in giving them each a very warm welcome. 

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Categories: News

Genetics Research into LAM Leads to a New Discovery


Genetic research sponsored by The LAM Foundation has led to a new discovery!
We need your help to learn more.

What can saliva samples teach us about LAM? It took a global network of patients, researchers, and donors like you to find out. Everything began with one common connection—The LAM Foundation. We are the global leader in the

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Categories: News

From $500 to $5,000: Rachel Faleide’s Phenomenal Facebook Fundraising


In August 2018, Rachel Faleide, MSN, FNP-C was diagnosed with LAM. In September 2018, she decided to share her diagnosis with friends and family by starting a Facebook fundraiser for The LAM Foundation. Rachel’s initial goal was to raise $500. In just weeks, she smashed that goal by raising over $5,000! Here, she shares the story behind her fundraising success.  

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Tags: Facebook Fundraising
Categories: News

2018 Advances in LAM


With your support, The LAM Foundation continues to thrive as a source of hope for individuals affected by LAM. We have again accelerated research and improved patient care, with each day moving us closer to a cure. Learn more about a few of our 2018 accomplishments. 

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Tags: clinical care LAMposium 2018 patient support Research
Categories: News

More Ways to Give: Qualified Charitable Distributions from IRAs


Are you or someone you know over the age of 70 ½ and looking for more ways to give to The LAM Foundation? You may be able to donate through a Qualified Charitable Distribution! Read on to learn more about this opportunity to give.

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Tags: Donations IRA Qualified Charitable Distributions
Categories: News

Short-Term Goals, Long-Term Effects: Outcomes of the 2017 LAM Patient Benefit Conference


How can we improve the lives of LAM patients in five years or less? This is the question scientists, clinicians, and patients themselves gathered to answer at the first-ever LAM Patient Benefit Conference. Among the many valuable ideas shared, the following grant proposals have received funding to move forward. Each was chosen for its potential to result in solutions that will positively impact the diagnosis, care, or quality of life of LAM patients by the year 2023.

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Tags: Patient Benefit Conference Research
Categories: Events News

Running for LAM: Q&A with Kat Steele


Kat Steele is a LAM patient who commemorated the 5-year anniversary of her diagnosis by participating in the New Hampshire Marathon on September 29, 2018. Here, she shares insights from her journey as a LAM patient, as a runner, and as a fundraiser. 

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Tags: Fundraising
Categories: Events News

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