Author: Anne McKenna - Community Manager

If You Could Ask an Expert to Solve Your Most Vexing Issue with LAM, What Would it Be?

Posted on March 17, 2017   |   

The obvious answer to this question is: a cure. A cure would negate every other complication caused by LAM. Indeed, finding a cure remains our number one priority at The LAM Foundation. However, in the intervening years, we know there are many questions and issues that, if solved or addressed constructively, might improve each patient’s quality of life as we endeavor to overcome the final barriers to a cure.

What would make life better for you now: hour to hour, day to day, month to month, clinic visit to clinic visit? The answers you provide to this question will set the agenda and priorities for the upcoming “Patient Benefit” Research Conference, to be held concurrently with LAMposium LA.

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Topics: LAMposium LA Patient Benefit        Categories: Events

Have Bike, Will Ride for LAM

Posted on March 17, 2017   |   

Katherine Lu Hsu, talks about her experience at the UPENN Million Dollar Bike Ride (MDBR) and why the MDBR community and supporting The LAM Foundation are so important to her. 

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Topics: Fundraising        Categories: Events

PARTICIPATE: LAM Research Survey

Posted on February 03, 2017   |   

This letter is an invitation to participate in a research survey. The purpose of the research is to answer important questions about medication use and quality of life in LAM patients who are considering or who have undergone lung transplantation.

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Topics: LAM Research        Categories: Educational Resources

Top 10 Ways YOU Can Accelerate LAM Research

Posted on February 03, 2017   |   

Facilitating and funding research has always been the core mission of The LAM Foundation. In this regard, we have achieved exceptional results as a rare disease organization and a united community.

This is possible when each of us 1) identifies what we can do and 2) TAKES ACTION. Together we can stimulate new ideas, unleash new funding and deliver a cure for LAM.

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Topics: LAM Research        Categories: Educational Resources

Vaccinations for Patients with LAM

Posted on January 25, 2017   |   

Vaccines are a wonderful addition to the world of medical care, providing so much benefit for people, and with such safety. And vaccines are the ultimate example of preventive medical care, producing great protection from what can be disastrous infections, particularly in patients with significant lung problems.

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Topics: Patient Care Vaccines        Categories: Educational Resources

How is Your Exercise Routine Going So Far This Year?

Posted on January 19, 2017   |   

Rebecca Crouch, DPT, MS, CCS talks about how the advantages of regular exercise and how you can even manage to fit exercise in on those terrible, ugly, “I don’t want to get out of bed” days. 

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Topics: Exercise Pulmonary Rehab        Categories: Educational Resources

Ask the Doctor: Are Generic Drug Products as Safe and Effective as Brand Name Drug Products?

Posted on January 17, 2017   |   

Gene Sullivan, MD, Emeritus Board Member of The LAM Foundation and former Deputy Director of the Division of Pulmonary and Allergy Products at the USFDA answers questions about the difference between generic and name brand drugs, specifically in regards to sirolimus and Rapamune.

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Topics: Generic Drugs Sirolimus        Categories: Educational Resources

The Air We Breathe

Posted on January 17, 2017   |   

This time last year, I discovered an opportunity to apply for a grant through my pharmacy school program at the UNC Eshelman School of Pharmacy. I knew that I wanted to find a way to use the grant to help educate physicians about LAM, but I was not sure exactly what or how to go about it. I called Sue Sherman and told her about the opportunity and we brainstormed. Sue informed me the new LAM Guidelines would be published in 2016 by the American Thoracic Society. In healthcare, promoting guidelines can be a challenge. It is both expensive and time consuming, so I pitched the idea to Sue that I write a grant to help spread the news about the new guidelines.

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Topics: Air We Breathe Guidelines        Categories: News
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