Presentations at the 2017 #LAMposiumDC

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A link to all presentations can be found here.

 

Here is an overview of the presentations from LAMposiumDC:

 

LAM 101
Charlie Strange, MD, LAM Clinic Director, Medical University of South Carolina

Dr. Strange will discuss the basics of LAM and provide a general overview of how it is diagnosed and managed, along with its various signs and symptoms. Medical testing to evaluate LAM will also be discussed.


Oxygen Workshop
Beverly Jackson, LAM Liaison
Susan Jacobs, RN, MS, LAM Clinic Coordinator,  Stanford University Medical Center

Co-presenters Beverly and Susan present on the basics of using supplemental oxygen,  an interactive oxygen equipment workshop and future trends for oxygen equipment. 

Patient and Scientist Collaboration through Clinical Trials
Francis X. McCormack, MD, Scientific Director, The LAM Foundation

Dr. Frank McCormack shared his presentation on current and recently completed LAM clinical trials. More LAM trials are enrolling than ever before and Dr. McCormack offered advice for how you can navigate the important decision to participate in research.


Exercise: What are the Important Questions to Ask?
Rebecca Crouch, PT, DPT, MS, CCS, Campbell University and Duke University Medical Center

This presentation will answer your exercise questions; for example, How much exercise is safe?  How much is too much?  How do I monitor myself so that I do enough? How do I manage oxygen when I exercise?  What tangible results can I expect from all that work?

Anyone Can Be a Major Fundraiser
Katie Jensen, Development Manager, The LAM Foundation

We can't all be major donors, but we can all be major fundraisers! Katie Jensen shares how you can have a big impact on the future of LAM - no experience or event managing required!

 

Drug Therapy for LAM
Maryl Kreider, MD, LAM Clinic Director, University of Pennsylvania 

Sirolimus can be effective in decreasing the decline of lung function in some women with LAM. Dr. Kreider reviews the practical aspects of starting drug therapy, helping women with LAM understand and prepare to achieve optimal outcomes with their treatment plan. 

LAM and Lung Collapses: Diagnosis and Management Options for Optimal Outcomes

Nishant Gupta, MD, LAM Clinic Director, University of Cincinnati Medical Center

 

Dr. Gupta discussed the burden of spontaneous pneumothorax in patients with LAM, and presented best practices for treatment, including pleurodesis. He discussed the importance of early intervention and the effectiveness of pleurodesis in preventing further lung collapses.


Calming the Mind, Healing the Body and Renewing the Spirit
Nancy Harazduk, MEd, MSW, Assistant Professor at Georgetown University, School of Medicine
Dr. Harazduk introduces us to Mind-Body Medicine Skills and Experiences, such as guided imagery, mindfulness meditation and experiential exercising. 

 

Integrative Health and Medicine
Leonard Wisneski, MD, Clinical Instructor, University of Colorado Department of Medicine

The revolutionary movement of evolving from a health system strictly focused on disease to one that incorporates lifestyle, wellness, and well-being is in the early stages of crystallization and is rapidly moving to fruition. This workshop presents an overview of this approach and offer evidence-informed considerations for people with LAM.

 

Roadmap for Successful LAM Clinic Visits
By Lisa Young, MD, LAM Clinic Director, Vanderbilt University Medical Center

This session discussed strategies for how to get the most from your LAM clinic visits, including leveraging resources available through The LAM Foundation. 

 

Lung Transplant: Things to Consider on Your Journey
By Cathy Cantilena, MD, LAM Patient & Marla Hamlin, LAM Patient

Lung Transplant Recipients, Dr. Cathy Cantilena and Marla Hamlin, shared their journeys toward receiving double lung transplants, along with sage advice for anyone considering the listing process. They share their thoughts on creating a support team, tissue donation and what to expect after surgery.

New Insights into the Genetics of LAM (coming soon)
Thomas Darling, MD, PhD, Uniformed Services University of the Health Sciences Department of Dermatology

During this talk, Dr. Darling focused on how clinical and genetic studies are providing insights into the possible origins of LAM cells and how this may impact the management of LAM. It is known that LAM cells have the same genetic mutations as tuberous sclerosis complex (TSC). 

 

 


 

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