LAMposium DC or LAMposium LA…or Both!

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LAMposium DC or LAMposium LA…or Both!

Registration for the International Research Conference on TSC and LAM & LAMposium DC will open April 3. Registration for the Patient Benefit Research Conference & LAMposium LA will open in July. Both conferences offer a wealth of useful information and a chance to connect with friends new and old. How should you determine which conference to attend: LAMposium DC, LAMposium LA or both?

Let’s start with the basics; dates and locations:

Thursday, June 22 – Saturday, June 24, 2017
International Research Conference on TSC and LAM, LAMposium DC & TSC Regional Conference
Hyatt Regency Washington on Capitol Hill
400 New Jersey Ave, NW, Washington, DC 20001

Thursday, November 9 – Sunday, November 12, 2017
Patient Benefit Research Conference & LAMposium LA
The Westin Los Angeles Airport
5400 West Century Blvd., Los Angeles, CA 90045

Still need help making a decision? Let’s break things down:

International Research Conference on TSC and LAM, LAMposium DC & TSC Regional Conference

Thursday, June 22 – Saturday, June 24
Hyatt Regency Washington on Capitol Hill

The International Research Conference on TSC and LAM will gather participating senior and junior researchers and trainees. The conference goal is to stimulate and accelerate basic and clinical research to improve health care and quality of life for individuals with TSC, LAM and potentially many other related disorders including cancer, epilepsy, autism and rare diseases with overlapping phenotypes.

LAMposium DC will bring together LAM patients, family and friends for educational sessions. Presentations led by national experts will include topics such as disease and treatment fundamentals, LAM research trial updates, hormone management, LAM & TSC genetics, hands-on oxygen equipment demonstrations, the evolving health insurance landscape, integrative medicine modalities, lung transplant and more.

TSC Regional Conference will run concurrently on Saturday with LAMposium DC. Additional education sessions will provide information on the latest TSC treatment and testing options, basic and translational research updates and support options. There will be separate sessions devoted to different age groups and needs: pediatrics, transition age, and adults with TSC and LAM.

Breath of Hope Gala is an evening of inspirational celebration! The Gala, held on Saturday evening, is attended by women with LAM, family, friends and the scientific and medical LAM community. Join us for dinner and dancing, a silent auction, the rose ceremony and one of the largest annual fundraisers for LAM research, Fund A Cure. Learn more about the Breath of Hope Gala here.

Click here for additional LAMposium DC highlights and pre-conference activities.

Patient Benefit Research Conference & LAMposium LA

Thursday, November 9 – Sunday, November 12, 2017
The Westin Los Angeles Airport

Plans for the Patient Benefit Research Conference and LAMposium LA are still in progress. This conference will be innovative and inspirational – and will lead to new solutions for LAM patients.

Patient Benefit Research Conference will gather LAM clinicians, researchers, experts and a select group of patients. This group will work collaboratively to identify new therapies or products that will offer a tangible benefit to women living with LAM in five years or less. The sessions will address patient needs including: fatigue and shortness of breath, the mental health burden of LAM, the realities of oxygen therapy, exercising with LAM, how to predict disease progression/severity and the many side effects and concerns related to drug therapy. Our hope is to raise sufficient funds to support the most promising projects within a few months of the meeting.

LAMposium LA will gather LAM patients, family and friends together for educational sessions and roundtable discussions on similar topics. Presentations led by national experts will include topics such as disease and treatment fundamentals, LAM research trial updates, integrative medicine modalities, nutrition, exercise and more.

Breath of Hope Gala is an evening of inspirational celebration! The Gala, held on Saturday evening, is attended by women with LAM, families, friends and the scientific and medical LAM community. Join us for dinner and dancing, a silent auction, the rose ceremony and one of the largest annual fundraisers for LAM research, Fund A Cure. This Fund A Cure will be especially moving as we raise funds for the research that has just been identified during the Patient Benefit Research Conference.

Join us for LAMposium DC, LAMposium LA, or both if you can! You will learn something new, meet someone new, see something new and share new ideas.

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