LAMposium 2020

 

Information for Patients, Family & Friends

 

April 30 - May 3, 2020 
The Summit, A Dolce Hotel
5345 Medpace Way 
Cincinnati, Ohio 45227

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 Hotel Reservations: 866-898-3567   Room Code: LAM 2020 Conference

BOOK HOtel oNLINE HERE

LAMposium is the largest conference in the world where individuals with lymphangioleiomyomatosis (LAM), and their loved ones, have the opportunity to educate themselves, share their experiences and connect with others who have LAM. In addition, women with LAM and their families have a unique opportunity to meet LAM scientists and consult with the world’s most experienced LAM clinicians.

LAMposium Topics — Highlights

Topics that will be covered throughout the weekend include:

  • Advancements in Lung Imaging
  • Understanding Surgical Interventions for LAM
  • Optimizing Your Health Through Nutrition
  • Sexual Health, Menopause & LAM
  • Rapamycin: Everything You Need to Know
  • The Importance of Functional Fitness for LAM

We will also offer a variety of roundtable discussions covering topics such as Clinical Trial and Research Updates, Portable Oxygen, and Pulmonary Function Testing.
 

 

Conference Highlights plus

Welcome Mixer
Thursday, April 30 | 7:00 pm – 9:00 pm
Join us Thursday evening to share appetizers, experiences, friendship, and excitement for the upcoming weekend. All conference attendees are welcome, including speakers, professionals, patients, and family members.

LAMposium Patient and Family Educational Conference
Friday, May 1 | Sunday, May 3
Two fully programmed days of educational sessions covering a broad range of topics geared toward patients and families affected by LAM. To encourage communication and collaboration, all conference participants will dine together and are welcome to attend all sessions.

Research Conference Summary and Panel Discussion for Patients and Family
Sunday, May 3 | 9:00 am – 10:00 am
Drs. Henske and Downey will summarize the 2020 International LAM Research Conference for interested patients, family, and friends. Following the overview, they will open the conversation for final questions before LAMposium officially closes.

To learn more about LAMposium, click here

Friday Awards Banquet
Friday, May 1 | 6:30 pm – 8:30 pm
Celebrate the successes and advancements in LAM research achieved through the collaboration of scientists, clinicians, and patients. Frank McCormack, MD, Scientific Director of The LAM Foundation, will host as we recognize award recipients and welcome special guest speakers. All conference attendees are welcome. This dinner event is included with full conference registration.

Breath of Hope Gala & 25th Anniversary Celebration
Saturday, May 2 | 6 pm - Midnight
Join us as we mark The LAM Foundation's 25th Anniversary with an evening of hope, inspiration, and generosity at the Breath of Hope Gala, the Foundation’s largest annual fundraiser. Be sure to don your dancing shoes and your Derby-day hat as we celebrate our LAM community on this festive first Saturday in May.

All conference attendees welcome. This dinner event is included with full conference registration. Tickets for family and friends not attending the conference are also available.

To learn more about our Breath of Hope Gala, please click here

 

LAMposium Mentor Program plus

The LAMposium Mentor Program, designed to provide conference support and guidance, matches veteran attendees, LAM patients themselves, with those patients less familiar with LAMposium. Making these connections early in the conference, or even beforehand, provides a rich and welcoming start to the weekend for all involved.

New this year:

  • Designated spaces and times to meet up, beginning Thursday evening and continuing through Friday lunch.
  • A 1:3 mentor to mentee ratio, allowing mentees to connect not only with their mentor, but with each other as well.

Request to be paired with a mentor if you are a LAM patient who:

  • Is attending the conference for the first time.
  • Is traveling from overseas.
  • Has had a gap in attendance and would like to reacquaint yourself with the conference.

Volunteer to be a mentor if you are a LAM patient who:

  • Has attended two or more LAMposiums.
  • Is eager to connect with fellow LAM patients who may be new to you.
  • Would like to share your enthusiasm, experience, and knowledge with others.

You can sign up for the mentor program when you register for the conference.

Questions? Please contact our Patient Outreach Coordinator Shar Dunn.

Remembrance Room plus

The Breath of Hope Remembrance Room is a space dedicated to honoring the beautiful women who have passed before us, those courageous women who lived with LAM and who worked and hoped for a cure. We invite you to spend time in the room in any way that feels good to you, be it remembering, reflecting, sharing stories, or sitting in peace and silence.

 

You will find the Remembrance Room in Mt. Auburn A.

Research Areaplus

The 2020 International LAM Research Conference & LAMposium will provide our researchers and scientists access to the largest gathering of LAM patients in the world, and it will offer our patients the most up-to-date information available regarding LAM clinical trials and research.

The conference Research Area is designed to connect patients directly with study coordinators and primary investigators, providing patients the opportunity to ask questions and make informed decisions regarding their participation in research.

Educational Sessions Focused on LAM Research

If you are interested in learning more about current LAM research or if you have questions about enrolling in a research study, be sure to attend the sessions and roundtable discussions listed below:

Advancements in Lung Imaging: Panel Discussion
Michael Evans, MD, Chase Hall, MD, Carmen Priolo, MD, PhD, and Adrienne Campbell-Washburn, PhD
Friday 2:30 p.m. - 3:30 p.m.
Mt. Adams

Rapamycin: From Fruit Flies to Easter Island, and MILES in Between
Robert Kotloff, MD
Saturday 8:45 a.m. – 10:00 a.m. Mt. Adams | Roundtable Discussion 10:15 a.m. – 11:15 a.m.
Mt. Healthy

Scientific Discussion Panel
Panelists TBD
Saturday 1:30 p.m. – 2:45 p.m.
Mt. Adams

Clinical Trials & Research for LAM – Roundtable Discussion
Susan McMahan, RN, BSN
Saturday 11:30 a.m. – 12:20 p.m.
Mt. Healthy

NIH Study Protocol – Roundtable Discussion
Joel Moss, MD, PhD
Saturday 11:30 a.m. – 12:20 p.m.
Mt. Healthy

Benefits of Exercise in LAM Patients Study – Roundtable Discussion
Mary Beth Brown, PT, PhD
Saturday 11:30 a.m. – 12: 20 p.m.
Mt. Airy

To learn more about current clinical trials and research studies for LAM, please visit our website here.