Susan Jacobs provides an overview of supplemental oxygen basics, assessing the need for oxygen, its importance, and how to integrate it into your daily routines.

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Watch 2025 International LAM Research Conference Co-Chairs, Dr. Elizabeth Henske and Dr. Simon Johnson, as they share conference highlights, key takeaways, and what has them excited for the future of LAM research.

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Dr. Marina Holz presented findings from the LAM Patient Research Priorities Survey (LAM-PREP.) In 2023, 754 members of the LAM community responded to this important survey. Watch this recording to learn what insights were gained and their impact on the Foundation’s research efforts and strategic planning process.

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Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.

Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.

00:02:42 Pelvic Floor Overview
00:16:15 Pelvic Floor and LAM Research
00:34:30 What Can You Do?
01:01:00 Q&A Session

Click this link to download a handout for your pelvic floor therapist: https://www.thelamfoundation.org/wp-content/uploads/2024/12/LAM-letter-to-potential-Pelvic-Floor-Therapists.pdf

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Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation

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LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up-to-date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

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