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Featured Article

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Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles

Recent Articles

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Why We Ride: Million Dollar Bike Ride

Posted on March 29, 2018   |   

Joe & Mary Van Brackel share a bit about their experience participating in the Million Dollar Bike Ride sponsored by the Penn Medicine Orphan Disease Center.

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Categories: Events
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HOPE 2.0

Posted on March 09, 2018   |   

CEO, Sue Sherman talks about the significance of the recent Patient Benefit Conference and how The LAM Foundation is embarking on HOPE 2.0.  

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Topics: Patient Benefit Conference        Categories: Events
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2017 Was a Good Year!

Posted on December 27, 2017   |   

With your support, The LAM Foundation continues to grow and be both a champion and innovator for LAM patients and their families. 2017 was once again a busy year at The LAM Foundation, as we continue to accelerate research and to improve patient care.

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Topics: 2017        Categories: News

A Phase II Clinical Trial of an Aromatase Inhibitor for Postmenopausal Women with LAM

Posted on November 21, 2017   |   

Lymphangioleiomyomatosis (LAM) predominantly affects women and can worsen with pregnancy, estrogen treatment, and the menstrual cycle, which suggested an important role for estrogen in the development and progression of this disease.

In preclinical laboratory studies, estrogen appeared to promote the growth and spread of LAM-like cells, while suppression of estrogen reduced the survival of LAM cells. In other human clinical trials, there has been a suggestion that lung function declines more slowly in LAM patients after menopause, although this was not clear when this clinical trial was being developed.

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Topics: Research        Categories: Educational Resources

Lobbying for LAM

Posted on November 21, 2017   |   

We often hear about the power of lobbyists/advocates and their ability to take on a specific cause with the goal of influencing change. But when The LAM Foundation decided to gather a group of LAM patients, family and friends in Washington, D.C. to advocate for LAM awareness and the need for continued funding of the NIH, it presented an opportunity almost as rare as the disease itself.

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Topics: Advocacy Capitol Hill        Categories: Events
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