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Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles

Recent Articles

What is the Patient Benefit Conference?

Posted on September 06, 2017   |   

Registration for the Patient Benefit Research Conference is officially open! The LAM Foundation staff is super excited about this conference, but we also realize the concept may still be unclear to many who might want to attend. I wanted to take a few minutes to help provide a better understanding of what it is and what you might learn by attending.

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Topics: Patient Benefit        Categories: Events

Advocacy Update: NIH Research Funding

Posted on July 31, 2017   |   

Since our time on Capitol Hill in late June, there has been much happening around the 2018 congressional budget. Below is the latest regarding NIH funding and information about how you can continue to help ensure this important funding is sustained in the 2018 budget.

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Topics: Advocacy NIH Funding        Categories: Educational Resources

Presentations at the 2017 #LAMposiumDC

Posted on June 24, 2017   |   
Author: Jackie Reau

Check out all the presentations from LAMposium DC.

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Topics: LAMposiumDC        Categories: News

The New Zealand LAM Charitable Trust

Posted on June 16, 2017   |   

The New Zealand LAM Charitable Trust was founded in 1999 by Bronwyn Gray and communicates with nearly 20 women with LAM. The home office is located in Auckland, New Zealand with one full-time employee, a voluntary coordinator and fundraiser and an eight member voluntary trustee group. The LAM Charitable Trust works closely with Scientific Advisor, Professor Merv Merrilees and Medical Advisors, Professor John Kolbe from the University of Auckland along with Dr. Christine Forster.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

LAM Netherlands

Posted on June 16, 2017   |   

LAM-Netherlands was founded in 2010 by Ine van Meijeren and communicates with 60 women with LAM. The headquarters for LAM-Netherlands is in Wijk and Aalburg. The organization is run by four volunteers, when needed, they ask for help from local women with LAM and their families.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources
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