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The Future of Monitoring Lung Function in LAM

Posted on May 07, 2021   |   

As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess the disease status for LAM patients. A full set of lung function tests comprises of the following:

1) Spirometry: measures the maximum amount of air you can exhale in the first one-second, known as forced expiratory volume in one-second (FEV1), and the total amount of air you can exhale, known

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Topics: Home Spirometry        Categories: Educational Resources

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Articles for category Educational Resources

LAM Netherlands

Posted on June 16, 2017   |   

LAM-Netherlands was founded in 2010 by Ine van Meijeren and communicates with 60 women with LAM. The headquarters for LAM-Netherlands is in Wijk and Aalburg. The organization is run by four volunteers, when needed, they ask for help from local women with LAM and their families.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

FLAM Association - France Lymphangioléiomyomatose

Posted on June 09, 2017   |   

FLAM Association (France Lymphangioléiomyomatose) was founded in July 2001 by Michèle Gonzalves and communicates with approximately 160 patients. The head office is based in Gosselming (Moselle, department 57). The Council has 10 members, all volunteers.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

About Alambra

Posted on June 09, 2017   |   

Alambra, the Brazilian association for Lymphangioleiomyomatosis patients, was founded in 2004 by Simone Garcia Ribeiro and Flávia Patitucci Sobroza. There are currently 120 LAM patients registered in the database of the Clinics Hospital of the Faculty of Medicine of the University of São Paulo.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

LAM Academy

Posted on June 02, 2017   |   

LAM Academy is a joint project between the Department of Respiratory Medicine and Allergy at the Karolinska University Hospital in Stockholm, Sweden, LAM patients and their relatives.

LAM Academy was founded in 2008 by LAM patient Anette von Koch and Medical Advisor Maryam Fathi, MD, PhD, from Karolinska University Hospital. LAM Academy communicates with more than 55 LAM patients. As there are less than 10 million inhabitants in Sweden, around 10 women per million are diagnosed with LAM.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

PARTICIPATE: LAM Research Survey

Posted on February 03, 2017   |   

This letter is an invitation to participate in a research survey. The purpose of the research is to answer important questions about medication use and quality of life in LAM patients who are considering or who have undergone lung transplantation.

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Topics: LAM Research        Categories: Educational Resources
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