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The Future of Monitoring Lung Function in LAM

Posted on May 07, 2021   |   

As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess the disease status for LAM patients. A full set of lung function tests comprises of the following:

1) Spirometry: measures the maximum amount of air you can exhale in the first one-second, known as forced expiratory volume in one-second (FEV1), and the total amount of air you can exhale, known

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Topics: Home Spirometry        Categories: Educational Resources

Recent Articles

Articles for category Events

LAMposium Means Hope

Posted on March 17, 2017   |   

After several months of suffering from shortness of breath, I asked a friend of mine, who is a doctor, what he thought I should do. He told me to get a chest X-ray; that is when I started to worry because my X-rays revealed that something was wrong with my lungs. He referred me to a specialist and told me to get a CT scan before going to the specialist’s office. On August 3, I was diagnosed with this rare disease I could not even pronounce: lymphangioleiomyomatosis – LAM. My pulmonologist explained what he knew about the disease and of course I was devastated.

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Topics: LAMposium 2016        Categories: Events

If You Could Ask an Expert to Solve Your Most Vexing Issue with LAM, What Would it Be?

Posted on March 17, 2017   |   

The obvious answer to this question is: a cure. A cure would negate every other complication caused by LAM. Indeed, finding a cure remains our number one priority at The LAM Foundation. However, in the intervening years, we know there are many questions and issues that, if solved or addressed constructively, might improve each patient’s quality of life as we endeavor to overcome the final barriers to a cure.

What would make life better for you now: hour to hour, day to day, month to month, clinic visit to clinic visit? The answers you provide to this question will set the agenda and priorities for the upcoming “Patient Benefit” Research Conference, to be held concurrently with LAMposium LA.

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Topics: LAMposium LA Patient Benefit        Categories: Events

Have Bike, Will Ride for LAM

Posted on March 17, 2017   |   

Katherine Lu Hsu, talks about her experience at the UPENN Million Dollar Bike Ride (MDBR) and why the MDBR community and supporting The LAM Foundation are so important to her. 

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Topics: Fundraising        Categories: Events
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Houston Education Gathering

Posted on October 19, 2016   |   

LAM Liaison, Kathi Hawn, was so excited to share her LAMposium experience with women in her region, she hosted a gathering in her home, just two weeks after the conference. And she invited some very important women who came to present on new LAM research that came from the RLDC•2016•LAMposium. LAM Clinic Director, Rosa M. Estrada-Y-Martin, MD, MSc, from the University of Texas Health Center and Caryn Pope, SLAM trial research coordinator from Baylor University were there to meet with everyone.

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Topics: Education Events        Categories: Events
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Breath of Hope Gala

Posted on October 19, 2016   |   

This year’s Breath of Hope Gala was a complete sell out with over 410 people in attendance! And with a crowd like that, everything was “off the charts”!

Our Breath of Hope Silent Auction tables had 50 fabulous donated items up for bid, generating well over $9,000. That’s $4,000 + more than last year!

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Topics: Fundraising LAMposium 2016        Categories: Events
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