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The Future of Monitoring Lung Function in LAM

Posted on May 07, 2021   |   

As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess the disease status for LAM patients. A full set of lung function tests comprises of the following:

1) Spirometry: measures the maximum amount of air you can exhale in the first one-second, known as forced expiratory volume in one-second (FEV1), and the total amount of air you can exhale, known

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Topics: Home Spirometry        Categories: Educational Resources

Recent Articles

Articles for category Events

What is the Patient Benefit Conference?

Posted on September 06, 2017   |   

Registration for the Patient Benefit Research Conference is officially open! The LAM Foundation staff is super excited about this conference, but we also realize the concept may still be unclear to many who might want to attend. I wanted to take a few minutes to help provide a better understanding of what it is and what you might learn by attending.

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Topics: Patient Benefit        Categories: Events

LAMposium DC or LAMposium LA…or Both!

Posted on March 27, 2017   |   

Can't decide whether to attend LAMposium DC, LAMposium LA or both?  Keep reading to learn about highlights for each conference and more information to help you make your decision. 

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Topics: LAMposium DC LAMposium LA        Categories: Events

Guest Blog: A 90’s Prom Fundraiser

Posted on March 24, 2017   |   

My biggest fear when I was growing up (other than sharks of course) was always that I would grow up and be ordinary. For as long as I can remember, something in my gut always told me that I was destined to do something unique and amazing. Little did I know that I would, in fact, become extraordinary, just not for the reasons I wanted. 

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Topics: Fundraising        Categories: Events

What I Learned on Capitol Hill

Posted on March 24, 2017   |   

I learned a lot of great lessons during my time ‘on the Hill’. I learned that my congressional representatives want to hear from their constituents about what matters to them. I learned that even though they may not understand what LAM is, they want to learn and want to help. And I learned that if you are visiting your representatives on the Hill, you should DEFINITELY wear comfortable shoes.

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Topics: LAM Day on Capitol Hill LAMposium DC        Categories: Events

LAM & TSC Patient-Focused Drug Development Meeting with the FDA

Posted on March 24, 2017   |   

The TS Alliance, in partnership with The LAM Foundation, is sponsoring a Patient-Focused Drug Development Meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by LAM and TSC and caregivers of dependent adults or children to communicate their perspectives on living with LAM and TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will REGISTER and make plans to attend in person or online.

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Topics: LAMposium DC PFDD        Categories: Events
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