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Featured Article

Zooming into What Matters Thumbnail 1.png

Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources

Recent Articles

Articles for tag LAM Awareness

The New Zealand LAM Charitable Trust

Posted on June 16, 2017   |   

The New Zealand LAM Charitable Trust was founded in 1999 by Bronwyn Gray and communicates with nearly 20 women with LAM. The home office is located in Auckland, New Zealand with one full-time employee, a voluntary coordinator and fundraiser and an eight member voluntary trustee group. The LAM Charitable Trust works closely with Scientific Advisor, Professor Merv Merrilees and Medical Advisors, Professor John Kolbe from the University of Auckland along with Dr. Christine Forster.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

LAM Netherlands

Posted on June 16, 2017   |   

LAM-Netherlands was founded in 2010 by Ine van Meijeren and communicates with 60 women with LAM. The headquarters for LAM-Netherlands is in Wijk and Aalburg. The organization is run by four volunteers, when needed, they ask for help from local women with LAM and their families.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

FLAM Association - France Lymphangioléiomyomatose

Posted on June 09, 2017   |   

FLAM Association (France Lymphangioléiomyomatose) was founded in July 2001 by Michèle Gonzalves and communicates with approximately 160 patients. The head office is based in Gosselming (Moselle, department 57). The Council has 10 members, all volunteers.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

About Alambra

Posted on June 09, 2017   |   

Alambra, the Brazilian association for Lymphangioleiomyomatosis patients, was founded in 2004 by Simone Garcia Ribeiro and Flávia Patitucci Sobroza. There are currently 120 LAM patients registered in the database of the Clinics Hospital of the Faculty of Medicine of the University of São Paulo.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources

LAM Academy

Posted on June 02, 2017   |   

LAM Academy is a joint project between the Department of Respiratory Medicine and Allergy at the Karolinska University Hospital in Stockholm, Sweden, LAM patients and their relatives.

LAM Academy was founded in 2008 by LAM patient Anette von Koch and Medical Advisor Maryam Fathi, MD, PhD, from Karolinska University Hospital. LAM Academy communicates with more than 55 LAM patients. As there are less than 10 million inhabitants in Sweden, around 10 women per million are diagnosed with LAM.

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Topics: LAM Awareness WWLAM        Categories: Educational Resources