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Featured Article

Zooming into What Matters Thumbnail 1.png

Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources

Recent Articles

Articles for tag LAMposium DC

LAMposium DC or LAMposium LA…or Both!

Posted on March 27, 2017   |   

Can't decide whether to attend LAMposium DC, LAMposium LA or both?  Keep reading to learn about highlights for each conference and more information to help you make your decision. 

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Topics: LAMposium DC LAMposium LA        Categories: Events

What I Learned on Capitol Hill

Posted on March 24, 2017   |   

I learned a lot of great lessons during my time ‘on the Hill’. I learned that my congressional representatives want to hear from their constituents about what matters to them. I learned that even though they may not understand what LAM is, they want to learn and want to help. And I learned that if you are visiting your representatives on the Hill, you should DEFINITELY wear comfortable shoes.

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Topics: LAM Day on Capitol Hill LAMposium DC        Categories: Events

LAM & TSC Patient-Focused Drug Development Meeting with the FDA

Posted on March 24, 2017   |   

The TS Alliance, in partnership with The LAM Foundation, is sponsoring a Patient-Focused Drug Development Meeting (PFDD) with the FDA on June 21, 2017, at the Hyatt Regency on Capitol Hill in Washington, DC, from 8:30 a.m. to 4:30 p.m. The purpose of this meeting is for individuals affected by LAM and TSC and caregivers of dependent adults or children to communicate their perspectives on living with LAM and TSC to the FDA. This meeting is free and open to the public, and it will be webcast live online. We hope you will REGISTER and make plans to attend in person or online.

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Topics: LAMposium DC PFDD        Categories: Events