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Featured Article

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Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources

Recent Articles

Articles for category Patient Profiles

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Navigating Emotional Complexity During a Pandemic

Posted on April 08, 2021   |   
Author: Sharon Young

I have always loved a good adventure. Part of it is the challenge. Part of it is the spirit of discovery. Part of it is the adrenaline rush. And part of it is, or at least was, a sense of reckless abandon. Ahhh, the intoxicating invincibility of youth! And what a rude awakening it was when the world reminded the not-so-invincible me that I was a mere mortal after all.     

For me, it was specific experiences, such as getting lost in the woods with the last light fading or fighting an

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Topics: COVID-19        Categories: Patient Profiles
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Letter-Writing for LAM: The Rocco Family's Fundraiser

Posted on May 28, 2019   |   

Our family became involved with The LAM Foundation in July of 2017. Our 20-year-old daughter, Marissa, was enjoying a day at the beach when she had some chest pain which intensified while walking and when she laid down. We took her to the ER, where a chest x-ray determined her left lung was about 95% collapsed. Despite efforts to correct the problem with chest tubes, she eventually needed surgery. At the same time, a CT scan of her lungs showed multiple cysts in both lungs.  

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Categories: Patient Profiles
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A Mindset Shift: Embracing the Unknown

Posted on March 26, 2019   |   

I’m not saying this is the easiest thing to do. I’m just taking it one day at a time. Embracing the LAM community has also been a huge help to me. Connecting with other women who have this disease has given me the security that I’m not alone in this fight. I will do my best to bring awareness to this disease. 

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Topics: diagnosis new patient        Categories: Patient Profiles
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Drawing a Circle of Hope

Posted on March 25, 2019   |   

A resource offered by The LAM Foundation, the Circle of Hope Transplant Support Program was established in 2018. The program connects LAM patients who are considering lung transplantation with those who have undergone the procedure, as well as with experts in the field.

Program Coordinator Sharlene Dunn shares her own journey to transplantation, the story behind the Circle of Hope, and the many inspirations she has found along the way. 

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Topics: Circle of Hope Lung Transplant support group        Categories: Educational Resources Patient Profiles