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Featured Article


The Future of Monitoring Lung Function in LAM

Posted on May 07, 2021   |   

As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess the disease status for LAM patients. A full set of lung function tests comprises of the following:

1) Spirometry: measures the maximum amount of air you can exhale in the first one-second, known as forced expiratory volume in one-second (FEV1), and the total amount of air you can exhale, known

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Topics: Home Spirometry        Categories: Educational Resources

Recent Articles

Author: Sharon Young

Sharon Young Spring 2021.jpg

Navigating Emotional Complexity During a Pandemic

Posted on April 08, 2021   |   
Author: Sharon Young

I have always loved a good adventure. Part of it is the challenge. Part of it is the spirit of discovery. Part of it is the adrenaline rush. And part of it is, or at least was, a sense of reckless abandon. Ahhh, the intoxicating invincibility of youth! And what a rude awakening it was when the world reminded the not-so-invincible me that I was a mere mortal after all.     

For me, it was specific experiences, such as getting lost in the woods with the last light fading or fighting an

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Topics: COVID-19        Categories: Patient Profiles