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Featured Article

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Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles

Recent Articles

Author: Caroline Currie, Digital Outreach Coordinator

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A Million Ways to Participate in The Million Dollar Bike Ride 2021

Posted on May 14, 2021   |   

The LAM Foundation Easy Breathers Cycling Team, led by LAM patients and families, has been a staple of the Million Dollar Bike Ride (MDBR) since its inception. Together, LAM Easy Breathers, the University of Pennsylvania, and The LAM Foundation have raised more than $665,000 in 7 years for LAM research through The Million Dollar Bike Ride. This money is distributed in a

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Topics: LAM Research Million Dollar Bike Ride        Categories: Events
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Join Us for a COVID-19 Vaccine Update Town Hall on April 20

Posted on April 12, 2021   |   

The LAM Foundation has partnered with the Tuberous Sclerosis Alliance to host a Virtual COVID Vaccine Update Town Hall on Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT.

Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM

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Topics: COVID-19        Categories: Events
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Endowed Professorship for LAM Research Created at UC College of Medicine

Posted on March 17, 2021   |   

Gifts totaling $1 million will support a new LAM Foundation Professorship for LAM Research, a first at the University of Cincinnati College of Medicine. Thanks to the generous support of The LAM Foundation, the Crissey family and the Hagins Family Matching Gift Program, this endowed professorship will ensure permanent support for a clinical scientist focused on the rare progressive lung disease called lymphangioleiomyomatosis, or LAM.

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Categories: News
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The LAM Foundation Announces New Leadership

Posted on February 12, 2021   |   

After 25 years of devoted service to women with LAM, their families, and the scientific and medical communities that support them, Dr. Frank McCormack has decided to step down from his current role with the Foundation, as the volunteer Scientific Director, taking on the new role of Emeritus Scientific Director. Dr. Nishant Gupta has been named as the new LAM Foundation Scientific Director, joining the Board of Directors. He also becomes the first person to hold The LAM Foundation Professorship for LAM Research at the University of Cincinnati (UC). 

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Categories: News
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Research Survey for Rare Disease Patients about Impacts of COVID-19

Posted on May 12, 2020   |   

Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families. 

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Topics: COVID-19        Categories: News
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