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Featured Article

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Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources

Recent Articles

Author: Caroline Currie, Digital Outreach Coordinator

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Join Us for a COVID-19 Vaccine Update Town Hall on April 20

Posted on April 12, 2021   |   

The LAM Foundation has partnered with the Tuberous Sclerosis Alliance to host a Virtual COVID Vaccine Update Town Hall on Tuesday, April 20 at 6:00 PM ET| 3:00 PM PT.

Peter Crino, MD, PhD of the University of Maryland Medical Center and Nishant Gupta, MD of the University of Cincinnati Medical Center will provide updates on the current COVID-19 vaccines in the TSC and LAM

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Topics: COVID-19        Categories: Events
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Endowed Professorship for LAM Research Created at UC College of Medicine

Posted on March 17, 2021   |   

Gifts totaling $1 million will support a new LAM Foundation Professorship for LAM Research, a first at the University of Cincinnati College of Medicine. Thanks to the generous support of The LAM Foundation, the Crissey family and the Hagins Family Matching Gift Program, this endowed professorship will ensure permanent support for a clinical scientist focused on the rare progressive lung disease called lymphangioleiomyomatosis, or LAM.

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Categories: News
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The LAM Foundation Announces New Leadership

Posted on February 12, 2021   |   

After 25 years of devoted service to women with LAM, their families, and the scientific and medical communities that support them, Dr. Frank McCormack has decided to step down from his current role with the Foundation, as the volunteer Scientific Director, taking on the new role of Emeritus Scientific Director. Dr. Nishant Gupta has been named as the new LAM Foundation Scientific Director, joining the Board of Directors. He also becomes the first person to hold The LAM Foundation Professorship for LAM Research at the University of Cincinnati (UC). 

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Categories: News
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Research Survey for Rare Disease Patients about Impacts of COVID-19

Posted on May 12, 2020   |   

Rare disease patients or their caregivers are invited to complete a 20-minute online survey from home about the ways the novel coronavirus pandemic is impacting people with rare diseases and their families. 

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Topics: COVID-19        Categories: News
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Announcing Virtual Educational Series: LAMposium In Your Living Room

Posted on April 30, 2020   |   

The LAM Foundation is bringing LAMposium directly into your living room in the form of an interactive webinar series called, LAMposium In Your Living Room. These patient and family education webinars will feature the same LAM experts who were scheduled to present at the 2020 conference.

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Topics: LAMposium in Your Living Room        Categories: News
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