Posted on July 31, 2019 |
Over the last few months, some exciting changes have taken place at The LAM Foundation! We are thrilled to welcome a new staff member as well as congratulate one on a new position.
Mary Sue Wentzel has joined the team as the Patient Services Manager. Her responsibilities will include new patient and family support, patient registry management, clinical trial enrollment, LAMposium planning, and keeping us up to date on new LAM research publications. Mary Sue is a seasoned RN, MSN who worked at Cincinnati Children’s Hospital for many years. She was a clinical trial coordinator for a rare disease, and one of her main trials measured the efficacy of sirolimus for another condition. She worked closely with families and children suffering from vascular malformations, so she appreciates the stress and complexity that rare disease families face.
Mary Sue shares her excitement for this new opportunity in her own words:
“I am very excited to have joined The LAM Foundation Staff. I had been looking for a job that had patient/family interaction and caring as in my previous position. And I have found it! I am looking forward to talking with the women of LAM and hearing/learning about their journeys. I have much to learn and welcome any knowledge shared.”
Help us by welcoming Mary Sue to the LAM Community! She can be reached at firstname.lastname@example.org.
Another exciting change at The LAM Foundation is the expansion of Sharlene Dunn’s role, who is now the Patient Outreach Coordinator. She will continue to lead the Circle of Hope Program and will also be taking over management of the LAM Liaison Program. Shar has been incredible in supporting our transplant patients, and as a experienced LAM Liaison, will be equally as valuable in her new role. Shar spent some time at The LAM Foundation office recently, and shared her enthusiasm for taking on her new role:
“I am delighted and honored to expand my role with The LAM Foundation. I recently had the opportunity to spend time with our staff in the Foundation office. My return home found me filled to the brim with gratitude and inspired beyond words by the passion and dedication with which we, as patients and a LAM community, are supported by the amazing women leading the charge in our office. My goal is to carry forward that same passion in my role as Patient Outreach Coordinator. I look forward to working with you.”
Help us by congratulating Shar on her new role with The LAM Foundation! She can be reached at email@example.com.