Journeys

LAM Patient Research Priorities Survey Now Open

Dear LAM Community Members, The LAM Foundation prioritizes supporting LAM scientific research, funding a wide range of projects and initiatives. To maximize impact for LAM

LAM Patient Research Priorities Survey Now Open

This is Where Hope Lives

Google told me I had ten years to live. Ten years. Isaiah turned 10 this year, and he’s only just begun to live a life.

This is Where Hope Lives

Leadership Change at The LAM Foundation

After a decade of remarkable leadership of the LAM Foundation, Sue Sherman has informed the Board of Directors of her decision to step down from

Leadership Change at The LAM Foundation

COVID-19 UPDATES

COVID-19 continues to persist in the community at a relatively low level, mainly in the form of Omicron subvariants. Omicron subvariants are highly transmissible but

COVID-19 UPDATES

The latest in LAM research

Although the FDA’s approval of sirolimus for lymphangioleiomyomatosis was a major breakthrough in treating the disease, the drug does not work for all LAM patients.

The latest in LAM research

2023 Regional TSC & LAM Conference Series

The TSC Alliance® and The LAM Foundation will join together once again to co-host four Regional TSC & LAM Conferences in 2023 aimed at individuals

2023 Regional TSC & LAM Conference Series

World Pneumothorax Day

June 30 is World Pneumothorax Day and a great opportunity to educate yourself and your loved ones about what is often a painful and debilitating

World Pneumothorax Day

Why I ride the Million Dollar Bike Ride

Cycling is a mix of disciplines: mountain, road, BMX, cross country, downhill, touring, fat tire, tandem, leisure/urban, cycle cross, and the latest new thing, gravel.

Why I ride the Million Dollar Bike Ride

A Conversation with Bonnie Wang, MD

Dr. Bonnie Wang is a clinical assistant professor in internal medicine and pulmonary and critical care at the University of Michigan. Her clinical and research areas of

A Conversation with Bonnie Wang, MD

A Rare Public Health Challenge

Most public health challenges may seem obvious. The COVID-19 pandemic, for example, swept the globe and in some way touched the lives of everyone. But

A Rare Public Health Challenge

Complementary Medicine for LAM and Beyond

Our long-awaited attendance at our first LAMposium was truly an experience to remember.  Being a loved one of a woman with LAM and a physical

Complementary Medicine for LAM and Beyond

Where there once was fear, there is now hope

In 2020, Meagan Knight was a young newlywed, working as a nurse in a hospital COVID-19 unit when her lungs collapsed. No, it wasn’t COVID-19.

Where there once was fear, there is now hope

A Gift More Than 40 Years in the Making

Wendy Sellers, a 30-year-old wife and mother, had been struggling for months with unexplained lung issues before she finally received a LAM diagnosis. It was the early 1980s, when doctors knew little

A Gift More Than 40 Years in the Making

Legacy for a Sisterhood

Shellie Owens, a longstanding supporter and volunteer for The LAM Foundation, never let her LAM diagnosis stop her from doing everything she could to support her fellow LAM

Legacy for a Sisterhood

Fighting for a LAM Diagnosis and Now a Cure

For seven years, I continually searched for answers because I knew something was wrong with my health. I had a hard time breathing and started

Fighting for a LAM Diagnosis and Now a Cure

Life with LAM

Trust & Estate Administrator | Retired, Falls Church, VA Age: 64 | Diagnosed at age: 45 “Living with LAM has been an interesting journey! Although not

Life with LAM

Life with LAM

Marketing Professional | Founder, Accessible Itineraries | Certified Professional Coach, Brooklyn, New York Age: 42 | Diagnosed at age: 30 “I was diagnosed with LAM six

Life with LAM

Life with LAM

Stay at Home Mom, Newcastle, NSW Australia Age: 39 | Diagnosed at age: 26 “Being diagnosed at the age of 26 was very mentally challenging for

Life with LAM

Sirolimus Gave Stephanie a Second Chance

Two years ago, Stephanie Weber’s life was turned upside down. This active mom of three was struggling to breathe. She could barely even care for her Golden Retrievers. Stephanie ended up in the ER with a

Sirolimus Gave Stephanie a Second Chance

Drawing a Circle of Hope

A resource offered by The LAM Foundation, the Circle of Hope Transplant Support Program was established in 2018. The program connects LAM patients who are considering lung

Drawing a Circle of Hope

Life with LAM

Cosmetologist | Mexico “Since my LAM diagnosis, my life has changed completely. From leading to my divorce – because I was misunderstood by my partner

Life with LAM

Life with LAM

Lung Transplant Recipient | Canada “Living with LAM has been eye-opening. One day you think you’re fine, and the next day you have a rare

Life with LAM

Life with LAM

Sworn Translator and Interpreter | Guatemala City, Guatemala “I was diagnosed with LAM when I started to feel short of breath. Nothing else had happened

Life with LAM

Life with LAM

Talent Acquisition & Workforce Generalist | Seaside, California “I remember having chest pains about a year before my actual diagnosis and experienced shortness of breath

Life with LAM

Management of Pneumothorax – What is the Best Strategy?

By Sandra Starnes, MD, Associate Professor of Surgery, John B. Flege Chair in Cardiothoracic Surgery, University Of Cincinnati College Of Medicine Pneumothorax (collapsed lung from

Management of Pneumothorax – What is the Best Strategy?
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