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Featured Article

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Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

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Topics: Community Engagement diagnosis        Categories: Patient Profiles

Recent Articles

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A Million Ways to Participate in The Million Dollar Bike Ride 2021

Posted on May 14, 2021   |   

The LAM Foundation Easy Breathers Cycling Team, led by LAM patients and families, has been a staple of the Million Dollar Bike Ride (MDBR) since its inception. Together, LAM Easy Breathers, the University of Pennsylvania, and The LAM Foundation have raised more than $665,000 in 7 years for LAM research through The Million Dollar Bike Ride. This money is distributed in a

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Topics: LAM Research Million Dollar Bike Ride        Categories: Events
O'Toole_1.jpg

Finding Hope Through LAM Community Engagement

Posted on May 14, 2021   |   

I was diagnosed with LAM and probable Tuberous Sclerosis Complex (TSC) in 2019 at 26 years old, when I was working three jobs and attending graduate school in Colorado. As an active twenty-something still trying to figure out my life, the stress of understanding what this diagnosis meant for my future weighed heavily on me.

Read More

Topics: Community Engagement diagnosis        Categories: Patient Profiles
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The Future of Monitoring Lung Function in LAM

Posted on May 07, 2021   |   

As all LAM patients are well aware of, serial lung function testing performed in a physician’s office is the current standard of care to assess the disease status for LAM patients. A full set of lung function tests comprises of the following:

1) Spirometry: measures the maximum amount of air you can exhale in the first one-second, known as forced expiratory volume in one-second (FEV1), and the total amount of air you can exhale, known

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Topics: Home Spirometry        Categories: Educational Resources
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Finding our New Normal: The Rise of Telemedicine for LAM

Posted on April 22, 2021   |   

Telemedicine – the use of video technology to offer “virtual visits” as a substitute for conventional face-to-face visits – has been available for over a decade. However, its use was limited because neither government nor commercial insurers provided reimbursement for telemedicine visits. As a result, only a handful of health systems offered this option, and patients choosing this option often had to pay out of pocket. The COVID-19 pandemic has accelerated the widespread implementation of

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Topics: COVID-19 Telemedicine        Categories: Educational Resources
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Zooming-In on What Matters: Education. Connection. Hope.

Posted on April 16, 2021   |   

March 2020. LAMposium as we know it is cancelled. May 2020. LAMposium in Your Living Room goes viral. Whoops, that is, virtual.

Last spring, when it became clear to us that we would not be gathering as a LAM community in Cincinnati, we at the Foundation quickly shifted our focus to designing virtual experiences that would capture the key elements of our beloved LAMposium. It is this vision that frames our virtual educational series, Read More

Topics: LAMposium in Your Living Room        Categories: Educational Resources
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