Video Library

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Dr. Marina Holz presented findings from the LAM Patient Research Priorities Survey (LAM-PREP.) In 2023, 754 members of the LAM community responded to this important survey. Watch this recording to learn what insights were gained and their impact on the Foundation’s research efforts and strategic planning process.

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Pelvic floor issues, including urinary incontinence, bowel leaks, and pelvic organ prolapse, can significantly impact the quality of life for women living with LAM. While many may attribute these challenges to coughing, recent research reveals a more complex relationship between LAM and stress urinary incontinence that may surprise you.

Brenna Lanton, DPT, and Jennifer Miles, PT present this engaging workshop where they explore the latest findings on pelvic floor dysfunction related to LAM. They discuss effective treatment options, practical strategies for managing symptoms, and the importance of addressing these concerns openly and without shame.

00:02:42 Pelvic Floor Overview
00:16:15 Pelvic Floor and LAM Research
00:34:30 What Can You Do?
01:01:00 Q&A Session

Click this link to download a handout for your pelvic floor therapist: https://www.thelamfoundation.org/wp-content/uploads/2024/12/LAM-letter-to-potential-Pelvic-Floor-Therapists.pdf

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Watch this informative presentation featuring Bridget Doyle, a lung transplant dietitian, who provides comprehensive, step-by-step nutritional guidance on preparing for and thriving after your transplant. Discover strategies for managing weight, maintaining bone health, handling medication interactions, and ensuring proper vitamin and mineral intake, along with essential food safety precautions.

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Watch LAM experts Dr. Vera Krymskaya, Dr. Lisa Henske, and Dr. Stephen Hammes discuss current LAM research priorities and what holds potential for new therapies in the future.

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Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation

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Watch this recording of the April 2024 LAMposium in Your Living Room Circle of Hope (COH) webinar LAM Tissue Donation: Who, What, When, Why, and How.

It is never too early to consider or consent to helping move LAM science forward through tissue donation. Saboor Shad, Director of Tissue Source Site Management at the National Disease Research Interchange (NDRI) fills us in on the details of donating living and post-mortem LAM tissue for research.

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LAMposium in Your Living Room

LAM Science Research Update + Rapamycin: From Fruit Flies to Easter Island, and MILES To Go

Since its inception, The LAM Foundation has invested over $18 million in LAM research with one of the biggest breakthroughs resulting in a current treatment. Progress and hope remain with The LAM Foundation’s current research portfolio of 15 active grants. Dr. Vera Krymskaya, Scientific Director for The LAM Foundation gave us the roadmap for LAM research as we continue to move forward in our fight for a cure.

In addition, LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up to date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

Link to Q&A Chat Box answers part one: https://www.thelamfoundation.org/wp-content/uploads/2024/03/CHATBOX-Questions-Part-1.pdf
Part two coming soon.

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