Video Library

Imaging is a critical tool in diagnosing and managing disease. Diagnostic Radiologist Dr. Donald Benson helps us understand what we see on our scans, what it might be mistaken for, and what we can do about it. A Q&A session with Dr. Donald Benson, Dr. Joseph Barney, and Dr. Nishant Gupta follows the presentation

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Watch this recording of the April 2024 LAMposium in Your Living Room Circle of Hope (COH) webinar LAM Tissue Donation: Who, What, When, Why, and How.

It is never too early to consider or consent to helping move LAM science forward through tissue donation. Saboor Shad, Director of Tissue Source Site Management at the National Disease Research Interchange (NDRI) fills us in on the details of donating living and post-mortem LAM tissue for research.

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LAMposium in Your Living Room

LAM Science Research Update + Rapamycin: From Fruit Flies to Easter Island, and MILES To Go

Since its inception, The LAM Foundation has invested over $18 million in LAM research with one of the biggest breakthroughs resulting in a current treatment. Progress and hope remain with The LAM Foundation’s current research portfolio of 15 active grants. Dr. Vera Krymskaya, Scientific Director for The LAM Foundation gave us the roadmap for LAM research as we continue to move forward in our fight for a cure.

In addition, LAM specialist Dr. Rob Kotloff shared the journey to finding rapamycin/sirolimus as a treatment for LAM and shared up to date information on what we know about its management and effectiveness. Whether you are a LAM patient currently on sirolimus or are wondering whether you should be, Dr. Kotloff’s expertise in explaining science in lay terms as well as his knowledge of treating women with LAM is an opportunity not to be missed.

Link to Q&A Chat Box answers part one: https://www.thelamfoundation.org/wp-content/uploads/2024/03/CHATBOX-Questions-Part-1.pdf
Part two coming soon.

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Mary Beth Brown, PT, PhD, and Claire E. Child, DPT, MPH, launched the new home-based exercise program and app, LAMFit.
LAMFit is an innovative digital fitness program designed specifically for individuals with LAM to help them increase their daily physical activity. LAMFit participants will use a fitness tracker, activity goal setting, and reminder messaging to monitor and increase physical activity over six months. Participants will also have the option to join a private, online LAMFit community engagement forum with weekly discussion topics and peer support.

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Please join us for an informative webinar with our Circle of Hope Medical Director and Chicago Clinic Director, Daniel Dilling, MD.

Have you ever wondered how decisions are made when it comes to prioritizing who receives a lung transplant? New policies went into effect this year which have the potential to put LAM patients in a stronger position to receive new lungs. Dr. Dilling explains these updates and more in this engaging program.

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Watch this dynamic discussion with LAM experts Marina Holtz, PhD, Carmen Priolo, MD, PhD, and Daniel Dilling, MD, about how patient insights and experiences accelerate basic, translational, and clinical research.

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LAM clinic directors answer questions asked by regional LAM patient liaisons on sirolimus, traveling, PFTs, VEGF-Ds, Covid-19, and more.

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