Advocate
Make calls, write letters, send e-mails, or schedule a meeting with your legislators when critical issues affect healthcare, research, and rare diseases. Your voice matters. Not sure where to begin? Contact Cindy Beasley at Cbeasley@thelamfoundation.org.
get involved
Learn more about supporting legislative advocacy efforts affecting the greater rare disease community and educate yourself on being an effective LAM advocate by going to The EveryLife Foundation.
Current Issues
Supplemental Oxygen Access Reform (SOAR)
Currently, there is a massive effort on the part of The LAM Foundation and other patient advocacy groups to get Congress to pass comprehensive oxygen reform to ensure access to liquid oxygen for patients for whom it is medically necessary. Read why LAM patient, Bev Jackson advocates for SOAR here.
Social Media Resources
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