Worldwide LAM Patient Coalition
The LAM Foundation Worldwide LAM Patient Coalition (WLPC)
In January 2007, The LAM Foundation formed the Worldwide LAM Patient Coalition (WLPC) to collaborate with patient organizations in Canada, Germany, France, England, New Zealand, Spain, Austria, Japan, China, Australia, Brazil, and Italy. Patient leaders within the WLPC have been named LAMbassadors!
In April 2007, representatives from ten different countries assembled in Cincinnati to participate in the inaugural meeting of the Worldwide LAM Patient Coalition. It was an extraordinary event and a great opportunity for everyone!
The LAM Foundation believes there are many ways to collaborate with other countries that have assembled and organized LAM patients into a cohesive group. Plans are underway to translate the LAM Patient Handbook into the language of each country represented in the WLPC, initiate a worldwide Advocacy Program, develop a WLPC website, create a LAM PSA in different languages, exchange fundraising ideas, and share newsletter articles, providing support for women around the globe.
The WLPC will be an excellent avenue to increase numbers for clinical research projects, facilitate research, and aid in recruitment for clinical trials. The LAM Foundation is excited about this partnership that will ultimately advance LAM science. We are convinced that we can greatly impact the lives of women with LAM through the WLPC and bring hope to LAM patients worldwide!
We are proud of our LAMbassadors!
Take a look to see who they are and read their personal stories. Also, read the bios of the Medical Advisors.
LAM Africa, Africa - Website
Khadijah Haliru, LAMbassador - Story
TBD, Medical Advisor
LAM Australasia Research Alliance (LARA), Australia - Website
Heather Telford, LAMbassador - Story
Allan Glanville, MD, FRACP, Medical Advisor - Bio
LAM Austria, Austria - Website
Viera Reptova, LAMbassador - Story
Associação LAM do Brasil, Brazil - Website
Flavia Sobroza, LAMbassador - Story
Carlos Carvalho, MD, PhD, Medical Advisor - Bio
LAM Canada, Canada - Website
Marsha Cohen, MD, FRCPC, LAMbassador - Story
LAM China - Website
Lily Wong, LAMbassador - Story
Kai-Feng Xu, MD, Medical Advisor - Bio
LAM Action, UK - Website
Gill Hollis, LAMbassador - Story
Simon Johnson, MD, Medical Advisor - Bio
Association FLAM, France - Website
Corine Durand, LAMbassador - Story
Romain Lazor, MD, Medical Advisor - Bio
LAM Selbsthilfe Deutschland, Germany - Website
Susanne Geiling, LAMbassador - Story
Hubert Wirtz, MD, Medical Advisor - Bio
Italy - Website
Iris Bassi, LAMbassador
Sergio Harari, MD, Medical Advisor - Bio
J-LAM, Japan
Reina Endo, LAMbassador - Story
Yoshikazu Inoue, MD, Medical Advisor - Bio
New Zealand LAM Charitable Trust, New Zealand - Website
Bronwyn Gray, LAMbassador - Story
John Kolbe, MD, Medical Advisor - Bio
The Netherlands - Website
Ine Van Meijeren, LAMbassador
Jan Grutters, MD, Medical Advisor - Bio
LAM Norway, Norway
Kristin Seim, LAMbassador - Story
LAMRomania, Romania - Website
OSC Agency, LAMbassador - Story
Mugur Bosinceanu, MD, Medical Advisor - Bio
AELAM, Spain - Website
Mari Luz Vila, LAMbassador - Story
Antonio Roman, MD, Medical Advisor - Bio
The LAM Foundation, United States
Susan Milligan, LAMbassador - Story
Frank McCormack, MD, Medical Advisor - Bio
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