News and Events
IMPORTANT NEWS
An Elkins Park woman battles back against a disease that simply takes your breath away.
Click here to read full article from the Jewish Exponet.
Treatment Trial for women with LAM is now open!
The MILES (Multicenter International Lymphangioleiomyomatosis Efficacy of Sirolimus) Treatment Trial is open for enrollment! Conducted through the Rare Lung Diseases Consortium - a network of Universities funded by the National Heart, Lung and Blood Institute (NHLBI) to perform cooperative trials. This trial will test the efficacy of an FDA-approved drug called sirolimus (rapamycin) in patients with lymphangioleiomyomatosis (LAM). Click here for details
More MILES Trial Sites Open for Enrollment!
The MILES Trial continues to enroll patients as additional sites open. If you or someone you know is interested in participating in the trial, please contact one of the sites listed below:
United States
Cincinnati Children's Hospital Medical Center - Cincinnati, OH
Principal Investigator: Frank McCormack, MD
Contact Person: Matthew Hodgson
Office: 513.636.1891
Email: MILEStrial@cchmc.org
Medical University of South Carolina - Charleston, SC
Principal Investigator: Charlie Strange, MD
Contact Person: Amie Gitter, RN
Office: 843.792.6569
Email: gitterac@musc.edu
National Heart, Lung, and Blood Institute - Bethesda, MD
Principal Investigator: Joel Moss, MD, PhD
Contact Person: Mary Haughey
Office: 301.496.3632
Email: mhaughey@nhlbi.nih.gov
Oregon Health and Science University - Portland, OR
Principal Investigator: Alan Barker, MD
Contact Person: Karlene Kennie
Office: 503.494.1305
Email: kenniek@ohsu.edu
Cleveland Clinic - Cleveland, OH
Principal Investigator: Jeffrey Chapman, MD
Contact Person: Diane Faile
Office: 216.444.9975
Email: failed@ccf.org
National Jewish Medical & Research Center - Denver, CO
Principal Investigator: Kevin Brown, MD
Contact Person: Marianne Morrison
Office: 303.270.2053
Email: morrisonm@njc.or
University of Florida at Gainesville - Gainesville, FL
Principal Investigator:
Contact Person: Angeline Leong
Office: 352.273.7589
Email: angeline.leong@alphaone.ufl.edu
Japan
Niigata University Medical & Dental Hospital
Niigata, Japan
Principal Investigator: Koh Nakata, MD, PhD
Phone/Fax: +81.25.227.0847
Email: radical@med.niigata-u.ac.jp
National Hospital Organization Kinki Chuo Chest Medical Center
Osaka, Japan
Principal Investigator: Yoshikazu Inoue, MD, PhD
Phone: +81.72.252.3021 (Ext 3122, 8105)
Fax: +81.72.252.3688
Email: giichi@kch.hosp.go.jp
CNN - LAM patient Kathy Stangl interviewed
Kathy's interview aired throughout the day on both CNN and Headline News, showing multiple times during the day on both stations. The story will also go out to more than 600 affiliated stations around the country, so it may be picked up by regional stations. Click here for more info
Click here to read the story and see the video on CNN's website.
LAM Foundation Scientist Elizabeth Henske Receives Medtronic Prize
Dr. Elizabeth Henske was awarded the Medtronic Prize from the Society for Women's Health Research in Washington, D.C. The $75,000 Prize is awarded to an outstanding scientist or engineer who has received national recognition and whose work has led or will lead directly to the improvement of women's health. Click here for more info
LAM Foundation's Founder Honored by American Thoracic Society
Sue Byrnes, Founder of The LAM Foundation, recently received the American Thoracic Society Public Service Award at the American Thoracic Society 2007 International Conference for her outstanding contributions in the public health arena related to respiratory disease and medicine, and for her significant life-long contributions to the field. Click here for more info
LAM Foundation's Scientific Director Recognized for LAM Research
Dr. Frank McCormack, The LAM Foundation's Scientific Director, was honored by the Cincinnati Business Courier for his contributions to patient care, research, management and community service. Chosen from more than 300 nominees, Dr. McCormack was the recipient of the Innovator Award. Click here for more info
UPCOMING EVENTS
August 27th-Bloomingdales Shopping Event-Chicago, IL
Times vary according to store hours
All 4 Bloomingdales in the Chicago area
Tickets being sold for $10 before the day of the event. The $10 goes directly to LAM while the ticket gets you 15%-20% off almost everything in any of the four Chicago area stores. For every person that goes in with a ticket that day, Bloomingdales will give another $5 to LAM. If 75 people make it to the stores, LAM will receive a portion of the general tickets sold!
Questions: Call Meg Chalmers at 773-339-9349 or email her at meghanchalmers@comcast.net.
Website is: www.friendsoflam.org
September 6th - Charity Softball Game - Grandslam for LAM - Allentown, PA
2pm - 6pm
1020 St. John St.
610-439-6078
Donations at Gate
Philadelphia Phillies Ball Girls vs PA State Police members
Activities at Event:
Meet and greet Phillies Ball Girls - autographs and pictures
Jump Around / spray on tattoos
Ferrous the Iron Pig Mascot - AAA Phillies Ball Team
PA State Police - fingerprinting children
Raffle for prizes during game
Questions: Call Ed Bloomfield at 610-972-6426
or email: ejb7435@rcn.com
for more info click here.
September 6th - Kickball Fundraiser - Springfield, VT
9am - 2pm at The Common on Cherry Hill 05156
Face painting and balloons for the kids
Light lunch provided
Questions: Call Alanna Lynch at 802-380-3207
or email: ryguy3329@comcast.net
September 20th - Kickball Fundraiser - Vernon, VT
9am - 2pm at Vernon Rec Pond Rd 05354
Face painting and balloons for the kids
Light lunch provided
Questions: Call Alanna Lynch at 802-380-3207
or email: ryguy3329@comcast.net
September 21st - 2nd Annual Hike for Lung Health - Chicago, IL
Along the lakefront in Chicago at Montrose Harbor or in Palatine at Deer Grove Forest Preserve
Registration begins at 8:30am
The walk (either 1 or 3 miles) will kick-off at 10:00am
After the walk, please join us for the Family Fun Fest and picnic!
The proceeds of the Hike help support The LAM Foundation and other charity partners of the Respiratory Health Association of Metropolitan Chicago (RHAMC) in our efforts to fight LAM, asthma, lung cancer, COPD, sarcoidosis, pulmonary fibrosis, ARDS, and other lung diseases, and to promote clean air.
**You may register for the Hike for Lung Health by joining our existing team, Hiking for LAM. There is a $10 registration fee for each walker. Each participant will receive a Hike for Lung Health t-shirt, a participant goody bag and are encouraged to take advantage of the family fun fest activities. Lunch tickets are available for purchase online at a later date. For more information and to register please go to http://www.lungchicago.org and click on the Hike for Lung Health icon. When you register, make sure to join existing team, "Hiking for LAM."
September 24th - Awareness Reception - Washington, DC
University Club
1135 Sixteenth Street, NW
Washington, DC 20036
Questions: Call Cathy Cantilena at 301-987-7390 or 301-451-8637
or email: cantilena@brtlabs.com
October 18th - A Breath of Hope Fall Silent Auction Benefit - Chicago
Mars Gallery in the West Loop of downtown Chicago, IL
1139 W. Fulton Market
Chicago, IL 60607-1220
There is plenty of time to get involved as we are actively collecting donations for our silent and live auctions.
Midwest Friends of The LAM Foundation website: http://www.active.com/donate/lamfoundation
Contact either Jennifer Seuring: jrseu71@yahoo.com or Carla Galvanoni: cgalvanoni@yahoo.com
**Please check back soon for more information**
Learn more about the symptoms, cause and treatment of LAM.
Get ideas and advice on how you can support The LAM Foundation.
Read about the latest news and happenings in the LAM community.