Search for an Article

 Search

To search by keyword(s), simply type the words in the search box and click Search.

To search for a specific phrase, enter the phrase within quotation marks and click Search.

To search for predetermined topics/tags or by type of resource, scroll down until you see the category and tags sections on the left navigation bar of this page. Then click on the category or topic of interest to reveal the corresponding videos.

Tag: LAMposium LA

Rare Disease Advocates at Work!

0 Comments   |   
Like 0 Likes

Global Genes Summit

Development Manager, Katie Jensen recently traveled to the Global Genes Rare Patient Advocacy Summit to learn from and collaborate with other rare disease leaders. Read about what she learned, who she met, and why she’s even more inspired for the Patient Benefit Conference & LAMposium LA!

Read More

Tags: Advocacy Global Genes LAMposium LA Patient Benefit Patient Benefit Conference Rare Diesases TS Alliance
Categories: Educational Resources

LAMposium DC or LAMposium LA…or Both!

0 Comments   |   
Like 0 Likes

Can't decide whether to attend LAMposium DC, LAMposium LA or both?  Keep reading to learn about highlights for each conference and more information to help you make your decision. 

Read More

Tags: LAMposium DC LAMposium LA
Categories: Events

If You Could Ask an Expert to Solve Your Most Vexing Issue with LAM, What Would it Be?

0 Comments   |   
Like 0 Likes

The obvious answer to this question is: a cure. A cure would negate every other complication caused by LAM. Indeed, finding a cure remains our number one priority at The LAM Foundation. However, in the intervening years, we know there are many questions and issues that, if solved or addressed constructively, might improve each patient’s quality of life as we endeavor to overcome the final barriers to a cure.

What would make life better for you now: hour to hour, day to day, month to month, clinic visit to clinic visit? The answers you provide to this question will set the agenda and priorities for the upcoming “Patient Benefit” Research Conference, to be held concurrently with LAMposium LA.

Read More

Tags: LAMposium LA Patient Benefit
Categories: Events

Sign In to Participate
Or register to become a member