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Air We Breathe Campaign: Building Awareness at Physician Conferences

Laura Bowers took the Air We Breathe Campaign to three medical conferences this May, building LAM awareness with physicians who first witness LAM symptoms with their patients.

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Tags: Air We Breathe LAM Awareness

Joel Moss, MD, PhD, Wins Prestigious NIH Orloff Award

he LAM Foundation congratulates Joel Moss, MD, PhD, for winning the 2016 National Institutes of Health Orloff Award. Dr. Moss and his team won this award for demonstrating the effects of therapy, hormonal status and cell signaling pathways on the detection and characterization of circulating tumor cells in patients with lymphangioleiomyomatosis (LAM) and tuberous sclerosis complex (TSC) and in models of tumorigenesis.

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Tags: NIH

The Air We Breathe Campaign takes LAM Guidelines on the Road

Laura Bowers is preparing to take the LAM Clinical Guidelines on the road to present them to Emergency Room and Ob/Gyn doctors. During the month of May, Laura Bowers and a handful of women with LAM will share their journeys and exhibit the newly published clinical LAM guidelines with the hope of educating doctors and giving them the tools to diagnose women with LAM faster.

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Tags: Air We Breathe LAM Guidelines

Helen Green Research Travel Fund

Women with LAM understand the importance of participating in LAM research. One of the most comprehensive and longest running LAM research studies is at the National Institutes of Health (NIH). For years, the NIH generously provided travel reimbursement for women with LAM to travel to the NIH to take part in the LAM protocol. Last year, patients new to the protocol had to cover their own travel expenses. When LAM patient Becky Hobgood found out about the change, she decided to do something about it.

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Tags: LAM Research

We're Platinum!

Thanks to our ongoing commitment to organizational transparency and ethical nonprofit practices, The LAM Foundation was recently awarded GuideStar’s highest honor, Platinum participant status.

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Tags: fundraising

2016 Advances in LAM

With your help, The LAM Foundation continues to be the leading champion for LAM patients and their families throughout the world. 2016 was a busy year for the Foundation, as we have continued to execute on visionary strategies to accelerate research, improve patient care, and ultimately to find a cure.

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Tags: 2016 Accomplishments LAM Awareness

From Drug Trial to FDA Approval

Frank McCormack, MD and Bruce Trapnell, MD recount the unique path it took to receive FDA approval of sirolimus for the treatment of LAM.

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Tags: FDA sirolimus

Why a Hospital Has a Harmonica Band

Patients at the University of Michigan pulmonary rehab center make music with the thing that troubles them most: their breath.

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Tags: Breathing difficulties Breathing Techniques Harmonica class LAM lung disease Lymphangioleiomyomatosis Pulmonary Rehabilitation University of Michigan

RLDC•2016•LAMposium and Breath of Hope Gala Photo Gallery

We are so excited to share with you all of the photos taken from the Rare Lung Diseases Research Conference, LAMposium and Breath of Hope Gala. Many thanks to Kelsey Adams for all of her work at the conference, she took some wonderful photos. It is really a lot of work keeping up with this LAM Community at LAMposium and we are thrilled we can share all of her photos with you. And a special thanks to Jen Fujikawa for gathering Kelsey’s photos and putting them into a gallery for us to view, download, save, share, post and purchase.

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Tags: LAMposium

RLDC•2016•LAMposium Highlights

We are less than a month away from the largest Rare Lung Diseases Research Conference to ever take place in the United States. And it is all happening September 22 – 25 at the Northern Kentucky Convention Center, directly across the river from Cincinnati, Ohio. The LAM Foundation is partnering with the Rare Lung Diseases Consortium to host the RLDC•2016•LAMposium. Researchers and clinicians who are studying or treating over 17 rare lung diseases will gather with us to share the latest research updates and discuss how to properly diagnose and treat these rare lung diseases.

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Tags: LAMposium

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